Where do you stand?

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Where do you stand?

Postby Luongo » Sun Feb 12, 2012 6:42 pm

This whole MS research thing seems so complicated. It seems like every so often there will be a wonderful news tidbit about a 'breakthrough' or a promising direction. However it also seems like these tidbits have been coming out for years now with nothing to show for it and the current DMD's are questionable at best.

So where do you stand in your feelings about MS research? More towards the optimistic side or more towards the pessimistic side?
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Re: Where do you stand?

Postby icecube2 » Mon Feb 13, 2012 5:15 am

Hi!

Me, I 'aint sitting around waiting, I will investigate what I believe contributes to my problems. My Dad did a lot of maintenance to his car and D.I.Y. he fixed things. He always taught me, something doesnt work for good reason, unless it is unserviceable. I have found my reason or reasons, I had a misaligned Atlas(a little bone between your head and your body) plus to complicate matters I had Candida/Candidiasis.

A problem in my neck has caused my lumber spine to twist, I reckon I kept adapting to it, in the need to stay on my feet until it was impossible to do so, hence me sitting in a chair with wheels today, but I am now sitting in it for the right reasons, it is my intention to eventually walk again, and that will happen in time.

Also I havent denied myself denial, and been convinced by others to accept the unacceptable, and thank goodness I havent. I am British and have stayed out of any system that exists for ms today i.e. the NHS.

I dont see a Neuro, dont have an ms nurse, and dont see my Doctor re ms, because in my opinion I do NOT have it.

So in a way I am in denial, I do DENY it. I am labeled secondary progressive, but thats all it is, a label.
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Re: Where do you stand?

Postby DougL » Mon Feb 13, 2012 6:51 am

Luongo wrote:This whole MS research thing seems so complicated. It seems like every so often there will be a wonderful news tidbit about a 'breakthrough' or a promising direction. However it also seems like these tidbits have been coming out for years now with nothing to show for it and the current DMD's are questionable at best.

So where do you stand in your feelings about MS research? More towards the optimistic side or more towards the pessimistic side?


i am new to the world of MS so maybe my opinion doesn't count as much.

i am optimistic. the results i have seen from CCSVI surgery, the results i have read about stem cells. two very promising areas to explore.

but i am optimistic mostly because of all the wonderful pwMS that i have met. when you experience their hope, one can only feel optimistic.
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