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 Post subject: Benfotiamine
PostPosted: Thu Feb 23, 2012 7:45 pm 
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Location: Canada
Has anybody here tried Benfotiamine to treat there MS symptoms such as nerve pain? Do you need a prescription from a doctor or can it be bought over the counter in Canada. Any success stories or is it `snake oil`. Thanks folks!


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 Post subject: Re: Benfotiamine
PostPosted: Fri Feb 24, 2012 6:00 am 
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sorry i never heard of it. but i did google it.

i would say you can buy it over the counter. for example Amazon carries it. not sure if Canada has it though.


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 Post subject: Re: Benfotiamine
PostPosted: Fri Feb 24, 2012 8:14 am 
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Benfotiamine is a potent form of vitamin B1 which seems to be helpful to diabetics with neuropathy. There is a discussion of it on this forum :
http://www.thisisms.com/forum/chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic9480-1110.html


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 Post subject: Re: Benfotiamine
PostPosted: Fri Feb 24, 2012 10:35 am 
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Hey thanks so much folks for your help! I think many of you people here are more knowledgeable about MS than many of the doctors we MSrs have to deal with. And my search for some type of pain relief from nerve pain continues..........


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 Post subject: Re: Benfotiamine
PostPosted: Fri Feb 24, 2012 11:45 am 
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lovebug wrote:
I think many of you people here are more knowledgeable about MS than many of the doctors we MSrs have to deal with. ....


wow, might be the nicest thing i have ever read on here.


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 Post subject: Re: Benfotiamine
PostPosted: Fri Feb 24, 2012 9:14 pm 
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hi lovebug, i have not tried it yet but plan to.

when i had the ccsvi treatment i woke up with a numb leg. they gave me no answers when i expressed my concern as i never in 22 yrs. experienced numbness. that was aug. 2, 2010. after consulting other doctors the only explanation would be that the entry at the femoral vein and femoral nerve are so close the femoral nerve got injured. i had hoped it would heal but instead it has worsened and spread.

i have never in 22 yrs. taken anything stronger than an asparin. but this numbness and pain has me screaming "uncle"!! so i broke down and asked my ppc dr. about it and for something for the pain. he has been my dr. for 20 yrs. and knows how i feel about drugs etc. he gave me a script for pain med.

"but" he also said i might want to try "high doses of b1"--that it is good for "healing injured nerves". why he never suggested it for ms??? but, when the nerve got injured otherwise he did. it's worth a shot. doesn't sound like it will do harm.


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 Post subject: Re: Benfotiamine
PostPosted: Sat Feb 25, 2012 8:07 am 
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Thank you `blossom`. I am on the hunt today for Vitamin B-1-in the stores. So far I have only found it in 100 mg.pills. And than I am not sure the dosage to start with. If it will help my nerve pain even a little I think I will feel like there really is a God out there...........I just don`t know how much longer I can stand living with this nerve pain that spans my entire hands to my arms with pins and needles and the tight band around the top of my ribs............


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 Post subject: Re: Benfotiamine
PostPosted: Sat Feb 25, 2012 12:45 pm 
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lovebug, when reading "tzootsi's" post here about benfotiamine she said it is a high potency b1. i did not realize that and connected the dots to what my primary care dr. had told me.
as said it's worth a shot.


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