hi randi, it's no fun being in limbo land
but, if you can use anything related to nutrition that might help you take proactive steps while you wait for the specialists' findings, i would be one of your go-to folks here at TiMS.
things like zinc, magnesium and B1 (thiamine) plus the rest of the b-complex, are some of the nutrients i have seen implicated in optic neuritis, nystagmus, etc.
welcome to the forum, i hope you find some info/support that will help you out.
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com