Don't know what to think.. need advice.

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Don't know what to think.. need advice.

Postby randilynn » Sat Mar 24, 2012 12:00 am

Hi all.

My name's Randi, and I've yet to be DX (have an MRI scheduled for May), but I presented with optic neuritis in my left eye in November- my vision still hasn't returned but the pain is gone. A few days ago I developed double vision but only when I look to my left, and I noticed this evening that when looking to my left my eyes don't track together, sort of a lazy eye type thing. Is this in any way MS related? I'm really scared because I'm a painter in my free time and the double vision makes it near impossible to do this.

I'm calling my Opthamologist on Monday but I can call the hospital to speak to an on-call opthamologist tomorrow if it's an emergency (don't know if it's considered one)

If anyone has any insight or advice it would be much much appreciated.
User avatar
randilynn
Newbie
 
Posts: 9
Joined: Tue Feb 14, 2012 1:29 am
Location: Canada

Advertisement

Re: Don't know what to think.. need advice.

Postby shaight » Sat Mar 24, 2012 10:12 am

if you cover one eye do you still have the double vision? that was one way of dealing with the double vision for me. if that works at least you'd be able to paint a little until it clears up.
shaight
Family Elder
 
Posts: 136
Joined: Fri Apr 29, 2011 3:00 pm
Location: NH USA

Re: Don't know what to think.. need advice.

Postby jimmylegs » Sun Mar 25, 2012 7:39 am

hi randi, it's no fun being in limbo land :(

but, if you can use anything related to nutrition that might help you take proactive steps while you wait for the specialists' findings, i would be one of your go-to folks here at TiMS.

things like zinc, magnesium and B1 (thiamine) plus the rest of the b-complex, are some of the nutrients i have seen implicated in optic neuritis, nystagmus, etc.

welcome to the forum, i hope you find some info/support that will help you out.
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
User avatar
jimmylegs
Volunteer Moderator
 
Posts: 9283
Joined: Sat Mar 11, 2006 4:00 pm

Re: Don't know what to think.. need advice.

Postby randilynn » Wed Mar 28, 2012 7:25 pm

So just to update in case anyone else is having the same or similar symptoms I just got back from the ophthalmologist and he said my double vision and lazy eye is left sixth nerve palsy and that it should go away on it's own- however he is trying to rush my MRI so I won't have to wait. It's looking more and more likely that I'll get my diagnosis by the end of the summer if all goes according to plan. He couldn't give me a time limit as to when it'll clear up so if anyone else has had this (the palsy) How long did it take to clear up, or if it didn't, did you get corrective surgery?
User avatar
randilynn
Newbie
 
Posts: 9
Joined: Tue Feb 14, 2012 1:29 am
Location: Canada

Re: Don't know what to think.. need advice.

Postby jimmylegs » Wed Mar 28, 2012 8:43 pm

heya this looks like an informative resource:
http://www.osnsupersite.com/view.aspx?rid=29849
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
User avatar
jimmylegs
Volunteer Moderator
 
Posts: 9283
Joined: Sat Mar 11, 2006 4:00 pm

Re: Don't know what to think.. need advice.

Postby Froggie » Wed Mar 28, 2012 9:03 pm

Hi Randi- I can understand your frustration. For me, visual problems have always been related to a relapse. I had Optic Neuritis 13 years ago and my then Ophthalmologist suspected it might be MS. I had an MRI, saw a retina specialist, and landed in the hospital for three days of Solu-Medrol followed by several weeks of Prednisone. The steroids helped, but it took several months before my vision was back to "normal". Also, my tests came back clean. When I was officially diagnosed three years ago, I had double vision and my right eye would not close as a result of the right side of my face being paralyzed. Went though the three days of Solu-Medrol again followed by a tapering dose of Prednisone. I think it took about two months for my vision to improve.

I hope you can get the MRI sooner than later. Do keep us posted. :smile:
User avatar
Froggie
Family Elder
 
Posts: 102
Joined: Thu Apr 15, 2010 3:00 pm
Location: Ohio


Return to General Discussion

 


  • Related topics
    Replies
    Views
    Last post
  • advice
    by rich77 » Tue May 11, 2004 10:56 am
    3 Replies
    1846 Views
    Last post by jicepf View the latest post
    Fri Jun 04, 2004 8:24 am
  • any advice?
    by RuSmolikova » Fri Sep 05, 2008 1:36 pm
    6 Replies
    1392 Views
    Last post by RuSmolikova View the latest post
    Mon Sep 08, 2008 1:29 pm
  • Need Advice
    by mmclane » Tue Dec 16, 2008 5:15 pm
    8 Replies
    1280 Views
    Last post by patientx View the latest post
    Wed Dec 17, 2008 2:22 pm
  • Advice anyone?
    by Sandrine » Thu Feb 12, 2009 1:59 am
    11 Replies
    1381 Views
    Last post by HarryZ View the latest post
    Fri Feb 13, 2009 7:43 am
  • Advice
    by patientx » Sat Feb 21, 2009 10:18 am
    14 Replies
    1549 Views
    Last post by skydog View the latest post
    Wed Feb 25, 2009 3:32 pm

Who is online

Users browsing this forum: No registered users