This Is MS Multiple Sclerosis Community: Knowledge & Support

Hey everyone, I am feeling a bit anxious right now. I was dx with rrms in may last year. I've been on rebif since then. I'm 29. I'm doing realy well overall. I am wondering what the chances are of me not being able to walk one day. All I could think of when this happend was that. Then I hear people say that over half of us msers have any problem walking. I'm scared and I don't know what to think.

Any words on this matter would be very helpful and appreciated! Thank you! God bless! Always in my prayers!
Diggie

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diggie!!

Start an exercise routine and stick to it. This will help keep you from getting caught in the vicious circle that is MS. In effect, MS makes it harder to do things, therefore you do less. As a result, it's even harder to do things... It can be terribly difficult to escape from, especially after a few years of doing less and less.


NHE

Hi Diggie

I agree with everythig that NHE has said. I was diagnosed almost 24 years ago and I can still walk around (not really a pretty site) but I get there. I use a wheelchair for shopping trips etc. I started going to my local gym 6 years ago but should have started it earlier and I'm sorry I didn't. Exercise regularly and keep a positive attitude. Not being able to walk is not the end of the world but stay fit and active as long as you can.

Gymbuff

This question is impossible to answer due to the unpredictable nature of ms. However, with a mild case of RRMS there are a boatload of things you can do to keep it at bay:
- exercise
- dietary changes (go to the direct-ms website for tons of info)
- supplements - vitamin D3, fish oil, etc. Again direct-ms is a good resource.
- limit stress
- CCSVI - seriously consider looking into this minor surgical procedure, which has helped many.
- give up smoking

The good news is that there are lots of breakthrus every day in the MS arena. I believe stem cell treatment is less than 10 years away. The odds of someone with a new and mild case of RRMS winding up in a wheelchair are quite low.

After having the same question, I tried researching prognosis information. All I could find were some statistics that suggest that how you doing the first 5-7 years after diagnosis correlates well with how you'll end up. Because I've done very well since diagnosis 8 years ago (and I'm on rebif, if that makes you feel any better), I'm deciding to believe the statistics...I honestly believe that I will always be able to walk. But I agree wholeheartedly with the advice to be an A student in Wellness 101. Eat quality food. Make and keep good relationships. And exercise. Do that one a lot.

Thank you so much!!!! You are all awesome and I really appreciate it! Time to quit smoking!!! And exercise more! <3
Diggie

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diggie!!

you might be interested in a couple of the links below:

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

I was diagnosed when I was 20 with RRMS. The first year was really shaky until I was put on Avonex. I took that for 5 years (it was hell) and I've been off meds for a couple years now without a relapse or any significant change. You just have to stay positive and it will all work out eventually.

Definitely quit smoking though. I was off and on for a while. I have finally quit for 2 years now with the odd cigar.

Yeah, I quit for 2 yrs a while back.. Before I was dx with the MS, now I smoke way too much and I cant stop! I tried the Wellbutron rout and all that, but that antidepressant made me really mad all the time. So I'm not sure when I'll finally stop. Stupid ciggs!!

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diggie!!

Get of the ciggies now. Cigarette smoke is full of methanol and formaldehyde - both potent neurotoxins.

I can only provide my own progression. My MS started when I was around 31. It was not diagnosed until I was 51, last October. My official dx is SPMS. I am up and around without restriction. If you saw me walking around you would never know I have MS. I plan to keep it that way!

Kyle

You have to take a moment and look yourself in the eye and make a decision on where you want to go with this. If you think that this isn't for you and you already have the upper hand than carry on making excuses. I've been there and I continue to be confronted with the same excuses. We all have a life long battle on the accuracy of the dx but it's a dx we have to live with. It's our choice not to take a dr's prognosis, it's our choice to take alternative medicines, in the long run it's up to use to to decide whats right for us.

Don't let the clouds cover your eyes. The sun will take care of them.

Beautiful words!!!! And thanks again all of you!! Seriously! Kyle, that is so freakin awesome!!!! Very happy for you!

Hugs, prayin for u all and God bless!!!!
Diggie

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diggie!!

What ezactly is a neurotoxin in words that I can understand? Lol

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diggie!!