Please someone help me with this question

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Please someone help me with this question

Postby diggiesmallz » Thu Mar 29, 2012 8:26 pm

Hey everyone, I am feeling a bit anxious right now. I was dx with rrms in may last year. I've been on rebif since then. I'm 29. I'm doing realy well overall. I am wondering what the chances are of me not being able to walk one day. All I could think of when this happend was that. Then I hear people say that over half of us msers have any problem walking. I'm scared and I don't know what to think. :oops:

Any words on this matter would be very helpful and appreciated! Thank you! God bless! Always in my prayers!
Diggie
diggie!!
diggiesmallz
Family Member
 
Posts: 26
Joined: Thu Mar 15, 2012 6:57 pm

Advertisement

Re: Please someone help me with this question

Postby NHE » Thu Mar 29, 2012 10:23 pm

Start an exercise routine and stick to it. This will help keep you from getting caught in the vicious circle that is MS. In effect, MS makes it harder to do things, therefore you do less. As a result, it's even harder to do things... It can be terribly difficult to escape from, especially after a few years of doing less and less. Image


NHE
User avatar
NHE
Volunteer Moderator
 
Posts: 3421
Joined: Sat Nov 20, 2004 3:00 pm

Re: Please someone help me with this question

Postby gymbuff » Fri Mar 30, 2012 1:16 am

Hi Diggie

I agree with everythig that NHE has said. I was diagnosed almost 24 years ago and I can still walk around (not really a pretty site) but I get there. I use a wheelchair for shopping trips etc. I started going to my local gym 6 years ago but should have started it earlier and I'm sorry I didn't. Exercise regularly and keep a positive attitude. Not being able to walk is not the end of the world but stay fit and active as long as you can.

Gymbuff
User avatar
gymbuff
Family Elder
 
Posts: 104
Joined: Tue Feb 16, 2010 3:00 pm
Location: Ireland

Re: Please someone help me with this question

Postby tzootsi » Fri Mar 30, 2012 5:55 am

This question is impossible to answer due to the unpredictable nature of ms. However, with a mild case of RRMS there are a boatload of things you can do to keep it at bay:
- exercise
- dietary changes (go to the direct-ms website for tons of info)
- supplements - vitamin D3, fish oil, etc. Again direct-ms is a good resource.
- limit stress
- CCSVI - seriously consider looking into this minor surgical procedure, which has helped many.
- give up smoking

The good news is that there are lots of breakthrus every day in the MS arena. I believe stem cell treatment is less than 10 years away. The odds of someone with a new and mild case of RRMS winding up in a wheelchair are quite low.
User avatar
tzootsi
Family Elder
 
Posts: 374
Joined: Sun Nov 22, 2009 3:00 pm

Re: Please someone help me with this question

Postby carolsue » Fri Mar 30, 2012 2:21 pm

After having the same question, I tried researching prognosis information. All I could find were some statistics that suggest that how you doing the first 5-7 years after diagnosis correlates well with how you'll end up. Because I've done very well since diagnosis 8 years ago (and I'm on rebif, if that makes you feel any better), I'm deciding to believe the statistics...I honestly believe that I will always be able to walk. But I agree wholeheartedly with the advice to be an A student in Wellness 101. Eat quality food. Make and keep good relationships. And exercise. Do that one a lot.
User avatar
carolsue
Family Elder
 
Posts: 167
Joined: Sun Jul 25, 2004 2:00 pm
Location: Sunnydale, USA

Re: Please someone help me with this question

Postby diggiesmallz » Sun Apr 01, 2012 2:17 pm

Thank you so much!!!! You are all awesome and I really appreciate it! Time to quit smoking!!! And exercise more! <3
Diggie
diggie!!
diggiesmallz
Family Member
 
Posts: 26
Joined: Thu Mar 15, 2012 6:57 pm

Re: Please someone help me with this question

Postby jimmylegs » Sun Apr 01, 2012 5:00 pm

you might be interested in a couple of the links below:
jimmylegs
Volunteer Moderator
 
Posts: 9171
Joined: Sat Mar 11, 2006 3:00 pm

Re: Please someone help me with this question

Postby DoubleD84 » Sun Apr 01, 2012 6:08 pm

I was diagnosed when I was 20 with RRMS. The first year was really shaky until I was put on Avonex. I took that for 5 years (it was hell) and I've been off meds for a couple years now without a relapse or any significant change. You just have to stay positive and it will all work out eventually.

Definitely quit smoking though. I was off and on for a while. I have finally quit for 2 years now with the odd cigar.
User avatar
DoubleD84
Getting to Know You...
 
Posts: 10
Joined: Mon Aug 09, 2010 2:00 pm
Location: Colborne, Ontario

Re: Please someone help me with this question

Postby diggiesmallz » Sun Apr 01, 2012 7:58 pm

Yeah, I quit for 2 yrs a while back.. Before I was dx with the MS, now I smoke way too much and I cant stop! I tried the Wellbutron rout and all that, but that antidepressant made me really mad all the time. So I'm not sure when I'll finally stop. Stupid ciggs!!
diggie!!
diggiesmallz
Family Member
 
Posts: 26
Joined: Thu Mar 15, 2012 6:57 pm

Re: Please someone help me with this question

Postby mrbarlow » Sun Apr 01, 2012 9:53 pm

Get of the ciggies now. Cigarette smoke is full of methanol and formaldehyde - both potent neurotoxins.
User avatar
mrbarlow
Family Elder
 
Posts: 380
Joined: Fri Dec 10, 2010 3:00 pm

Re: Please someone help me with this question

Postby KyleW » Mon Apr 02, 2012 11:00 am

I can only provide my own progression. My MS started when I was around 31. It was not diagnosed until I was 51, last October. My official dx is SPMS. I am up and around without restriction. If you saw me walking around you would never know I have MS. I plan to keep it that way!

Kyle
User avatar
KyleW
Newbie
 
Posts: 9
Joined: Sat Aug 13, 2011 2:00 pm

Re: Please someone help me with this question

Postby DoubleD84 » Mon Apr 02, 2012 11:57 am

You have to take a moment and look yourself in the eye and make a decision on where you want to go with this. If you think that this isn't for you and you already have the upper hand than carry on making excuses. I've been there and I continue to be confronted with the same excuses. We all have a life long battle on the accuracy of the dx but it's a dx we have to live with. It's our choice not to take a dr's prognosis, it's our choice to take alternative medicines, in the long run it's up to use to to decide whats right for us.

Don't let the clouds cover your eyes. The sun will take care of them.
User avatar
DoubleD84
Getting to Know You...
 
Posts: 10
Joined: Mon Aug 09, 2010 2:00 pm
Location: Colborne, Ontario

Re: Please someone help me with this question

Postby diggiesmallz » Mon Apr 02, 2012 2:15 pm

Beautiful words!!!! And thanks again all of you!! Seriously! Kyle, that is so freakin awesome!!!! Very happy for you!

Hugs, prayin for u all and God bless!!!!
Diggie
diggie!!
diggiesmallz
Family Member
 
Posts: 26
Joined: Thu Mar 15, 2012 6:57 pm

Re: Please someone help me with this question

Postby diggiesmallz » Tue Apr 03, 2012 5:14 pm

What ezactly is a neurotoxin in words that I can understand? Lol
diggie!!
diggiesmallz
Family Member
 
Posts: 26
Joined: Thu Mar 15, 2012 6:57 pm


Return to General Discussion

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service