I have been getting IVIG for presumed "inflammatory polyneuropathy/atypical cidp".. I have had double vision - mild in left eye for a while (since this whole mess first attacked my body) - it occurred suddenly, i went and saw an opthamologist (suburban one) he said things looked fine- it was just stress.. ha... i wish!
Anyhow, fast forward to a few weeks ago, my double vision has gotten worse, now in the right eye as well- and I have right eye pain when I move it.. Kind of like when you have the flu but a little worse. The eye/sclera is a little more red than normal I think..
So, I went and saw a neuro opthamologist for the first time yesterday. He said my left eye (the first one effected months ago) looks like it has lost some nerve fibers- showed past optic neuritis .. My right eye (now symptomatic/painful one) looked normal on his exam.. so then he did a test similar to VEPs (had those in the hospital months back - at the time they had to re -run the left side, but ended up stamping a normal on it).. i had the electrodes on my face/forehead and then some underneath my lower eyelid (anyone know what that test is called?) apparently it is similar to VEP's and shows brain/eye "connection".. my right eye was "inconsistent".. So then he decided to repeat my MRI- including orbital studies this time (i have had 2 MRI's in the last year- first one no lesions, 2nd one- one lesion in brain, and possible one in c spine).
So, I was curious if this sounds like an acute ON going on my right eye? this soreness upon movement? also when I look at colors and look away, its like the colors lag or blur for a second... and at times when I look away from colors they change- example- the red looks mometarily blue/greenish? I did pass all of those color tests at the dr yesterday..I am now on IVIG and plaquenil, but if this is by chance MS the treatment is a bit different, so I just want to be on the right tx.
Thanks for any advice!!