melissaVJT wrote:Sorry I keep posting just tell me if I should go find a different forum for answers.
this forum was created for people just like you. please continue to post.
melissaVJT wrote:I am really struggling to not let this get me down I feel like I only have one body and was a normal person (though i have struggled with thinking clearly for the past couple of years I had gotten used to it) and then this happened and I am I scared that I may never know what normal feels like again.
i understand your stuggles. my partner, who has had MS for more than half her life, still struggles with it. she requires medication to help her and that makes me sad.
she too talks about normal. i try to tell her its about enjoying what she can do and not worrying about what could be.
melissaVJT wrote:I told my stepmum everything that's happening and my dad hasn't bothered to call me once and even worse than that is probably laughing at me going oh no melissa has head problems but he doesn't get that this is really serious and I am scared.
sadly this is part of everyone's life. it is important that you surround yourself with positive people. stress is bad for everyone.
a happy Melissa is a healthy Melissa.
melissaVJT wrote:I am scared of not being normal again, I am scared of getting worse,
very understandable. there are many horror stories of people who got worse.
but in the last few years, there have been countless stories of people who are getting better. and countless more who finally can speak the word HOPE.
melissaVJT wrote: I am scared of dying, I am scared of loosing my ability to think or communicate at all and I am scared of burdening my husband and of not being able to care for my babies. I don't know why I haven't heard from the neurologist. I know that I should be fighting it and not caring about the diagnosis but its easier said than done and I just can't deal with being in such a messed up body without knowing whats wrong.
not knowing is very stressful. don't know why the neuro hasn't called you. maybe he doesn't have any answers yet.
but as you have said, there are things you can do now regardless of what is wrong. spend your time and energy on them and not so much worrying about getting answers. the answers will come at some point.
hope you have a good day