This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Tue Jun 18, 2013 10:48 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 5 posts ] 
Author Message
PostPosted: Fri Apr 13, 2012 1:18 pm 
Offline
Newbie

Joined: Fri Apr 13, 2012 1:13 pm
Posts: 1
Hi,

I have MS disease for the last 14+ years. I recently visited an MS clinic and they claimed that they could not see any trace of MS disease in the MR results (of my brain). Is it possible? Can the traces of MS in my brain disappear? Or should I be worried about the first diagnosis that is made 14 years ago?


Top
 Profile  
 
PostPosted: Fri Apr 13, 2012 4:19 pm 
Offline
Family Elder

Joined: Fri Feb 17, 2012 5:35 pm
Posts: 121
Do you still have symptoms of MS? Did you ever have symptoms of MS???


Top
 Profile  
 
PostPosted: Sun Apr 15, 2012 6:06 am 
Offline
Family Elder
User avatar

Joined: Tue May 25, 2004 3:00 pm
Posts: 2127
Location: London, ON, Canada
themiller wrote:
Hi,

I have MS disease for the last 14+ years. I recently visited an MS clinic and they claimed that they could not see any trace of MS disease in the MR results (of my brain). Is it possible? Can the traces of MS in my brain disappear? Or should I be worried about the first diagnosis that is made 14 years ago?


In the past few years researchers are saying that the lesions found in the brain's grey matter has a far more effect on one's MS than any lesions found in the white matter. We also know that lesions in white matter can come and go on their own and really aren't an accurate measure of one's MS. Add to the fact that almost all MRIs of MS patients' brains are done of the white matter makes diagnosing and following the disease far more difficult than ever.

Harry


Top
 Profile  
 
PostPosted: Sun Apr 15, 2012 6:18 am 
Offline
Newbie

Joined: Sat Apr 14, 2012 12:10 am
Posts: 8
So Harry they yet again are changing the rules to fit their own criteria. The current method of diagnosis goes back to a theory in the 19th century upon autopsy, this method doesnt seem to have ever been questioned for some reason.

How do they know that whiplash or trauma doesnt cause this kind of influence to the brain thus causing a false impression.

Are the saying that the diagnostic tool that they have been using for years up until now is the incorrect one


Top
 Profile  
 
PostPosted: Sun Apr 15, 2012 12:02 pm 
Offline
Family Elder
User avatar

Joined: Tue May 25, 2004 3:00 pm
Posts: 2127
Location: London, ON, Canada
offaduxback wrote:
So Harry they yet again are changing the rules to fit their own criteria. The current method of diagnosis goes back to a theory in the 19th century upon autopsy, this method doesnt seem to have ever been questioned for some reason.

How do they know that whiplash or trauma doesnt cause this kind of influence to the brain thus causing a false impression.

Are the saying that the diagnostic tool that they have been using for years up until now is the incorrect one


The number of lesions found in a MS patient's white matter has been one criteria for many years in helping diagnose MS. But notice I say "helping diagnose" MS. The docs normally don't base a final diagnosis on MRI lesions alone.

The drug companies, in their trials, have used the number of MS lesions in white matter MRIs as their measurement that the the particular drug is working...or not. Yet there is little correlation between lesions and MS symptoms. But hey, if it helps a drug get approved and brings in millions of dollars of revenue...why not?

Now they have machines that can measure grey matter lesions which appear to be a far more accurate in determining the level of MS one has.

Changing the criteria to suite the diagnosis...who knows but I would have far more reliance on grey matter lesions than anything in the past.

Harry


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 5 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. trace elements and abdominal pain

jimmylegs

3

1268

Tue Jul 17, 2012 6:31 am

jimmylegs View the latest post

There are no new unread posts for this topic. Gluten and trace mineral absorption

jimmylegs

2

1302

Sat Sep 13, 2008 5:54 am

Wonderfulworld View the latest post

There are no new unread posts for this topic. Brain mapping reveals how genes organize the brain surface

squiffy2

0

358

Mon Apr 02, 2012 1:01 am

squiffy2 View the latest post

There are no new unread posts for this topic. Your Bionic Brain: The Merging of Brain and Machine

scorpion

0

665

Tue Apr 13, 2010 6:18 pm

scorpion View the latest post

There are no new unread posts for this topic. Lesions on Brain Vs. Brain Stem

craftiegal

0

1146

Thu Jan 22, 2009 5:20 pm

craftiegal View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of personal Multiple Sclerosis stories on Experience Project. Experience Project is an anonymous community where people connect through their life experiences, made by the same people who built This is MS. With over 30 million personal stories about every possible life experience, you can quickly find people like you!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers

Advertise on the premier multiple sclerosis forum