I am panicking and I don't know what to do...

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I am panicking and I don't know what to do...

Postby randilynn » Thu Apr 26, 2012 12:49 am

I'm sorry if it seems like I'm spamming the board but I am FREAKING OUT. A few days ago I noticed a vibrating feeling in my right foot (like a tuning fork) when I bent my neck forward. When I woke up this morning the feeling was all the way up to my knee, and now it's all the way to the small of my back. I don't know what's happening, but I think it could be Lhermitte's sign? Does it normally progress this fast or at all? I'm meeting the doc tomorrow morning but I am terrified. Will it go away? Or am I just going to turn into a giant human tuning fork for the rest of my life. (sorry for the dramatics, just panicked.)

I'm mainly worried that this is a sign that lesions are popping up like weeds and I'll wake up and need a wheelchair in the morning. I only experienced my first symptom (optic neuritis) 4 months ago...
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Re: I am panicking and I don't know what to do...

Postby bags » Thu Apr 26, 2012 2:37 am

You don't come across as spamming. It's understandable to freak out from time to time. I consider it to be part and parcel of the condition. As to your leg, I really can't say.
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Re: I am panicking and I don't know what to do...

Postby jimmylegs » Thu Apr 26, 2012 5:40 am

it does sound like lhermitte's. i had quick ascending numbness when i got diagnosed. it mostly went away but i when the neuro tests my feeling in my feet (with an actual tuning fork funnily enough) he demonstrates that my feet are still a little numb. my hands are certainly still somewhat numb 6 yrs later. it's my 'new normal'.
it probably means there's an active c-spine lesion. can't say anything with certainty but a lot of ms patients have relapsing remitting, which means things tend to get better after they get worse.
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Re: I am panicking and I don't know what to do...

Postby randilynn » Thu Apr 26, 2012 9:43 am

thank's all for the replies. I'm feeling better mentally this morning, and I'm just about to head to the doctors so I'll keep you updated! :)
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Re: I am panicking and I don't know what to do...

Postby DougL » Thu Apr 26, 2012 9:48 am

randilynn wrote:thank's all for the replies. I'm feeling better mentally this morning, and I'm just about to head to the doctors so I'll keep you updated! :)

good luck.
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Re: I am panicking and I don't know what to do...

Postby Peanutsmommy » Tue Jun 05, 2012 7:54 pm

Hey randilynn, how are you feeling? Did the vibrations go away? I had it too and it was l'hermittes sign. It went away after a few months. My hands still feel "frostbitten" since Aug of 2011. I was Dx in December 2011. Hope you're doing better.
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