Getting Ready for not being sick

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Getting Ready for not being sick

Postby Largelumpyhead » Fri May 18, 2012 8:00 am

Hi Everyone,

I was looking for some advice on preparing yourself for not being sick, for getting a final diagnosis that physically I'm fine, it's in my head. How do you get help with such? Do I seek out a general councilor or once you're convinced you have a neurological issue and don't it's straight to the funny farm?

I don't want to review my entire drown out situation so I'll be brief:
*I'm 34-year-old very fit male who about three months ago fell ill with 95% of the MS symptoms. I had originally been going into the doctor to address muscle numbness and weakness in my right hand that had been an on and off issue for about a year. He originally thought it was a pinched nerve and said we'd hold off until my son was born. My son was born and within two weeks my left hand was coming down with the same sensations. I went back and he said he wanted me to see a Neurologist. I saw a Neurologist and he ran a EMG showing slight delay in my right hand. I then had to switch Neurologist due to insurance. Second Neurologist ran a EMG and it came back fine. For what it's worth, the second Neurologist had better staff a facility so I trust his result. Second Neurologist ran an MRI of spine and head which cam back fine. That spell lasted about three weeks then subsided. I've had restless legs and still issues with hands since but thought the other symptoms had passed. Well, they hit hard again Sunday night into Monday morning. We got back into Neurologist and he ordered second MRI which came back fine as well. He has me scheduled for spinal tap next Friday. I feel like something is truly wrong but also want to be objective. I've had two clean MRI's and I feel like my Neurologist thinks I'm nuts.

Any feedback?
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Re: Getting Ready for not being sick

Postby LR1234 » Fri May 18, 2012 8:12 am

It took 14 years for me to get diagnosed. I had 13 "clean" MRI's. (brain and spine) and 2 negative LP.

I eventually got my diagnosis in Jan 09 after a big relapse and my MRI now showed lesions and my LP became positive.


So just a quick post to say you are not nuts!! I would take care of myself if I were you....eat healthy (try to lower gluten/dairy intake)

If it is MS it will eventually show...i would just make sure there is not another explanation (Lyme, Hashimotos, a blood clotting disorder etc)
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Re: Getting Ready for not being sick

Postby Largelumpyhead » Fri May 18, 2012 8:21 am

I appreciate the feedback and can't imagine how you went through those 14 years. I've never wanted to be sick in my life but I want an answer so bad.
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Re: Getting Ready for not being sick

Postby jimmylegs » Fri May 18, 2012 4:03 pm

hi LLH, can you elaborate on what you mean by 'very fit'? ie describe habitual diet and lifestyle leading up to the neurological symptoms?
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Re: Getting Ready for not being sick

Postby MarkLavelle » Sun May 20, 2012 7:27 pm

Largelumpyhead wrote:I've had two clean MRI's and I feel like my Neurologist thinks I'm nuts.

Any feedback?
I would try to see a physiatrist that specializes in spinal issues. There's a very real chance that your sx are the result of spinal problems that neuros don't know how to dx...

RRMS dx 3/3/11; Copaxone since 12/1/11
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Re: Getting Ready for not being sick

Postby Largelumpyhead » Mon May 21, 2012 8:34 am

My right hand was going numb and getting weak for about a year. The symptoms came and went. I thought it was arthritis but test came back neg so I put it in the back of my head as just aging. Also thought I had a gout feeling in my toes at times but again, negative test and the gout feeling only lasted a few days. Again, just put things away in my head attempting to just push through. I was a very fit and active individual but had lost energy over the past year and again thought it was just aging. Went to a specialist about my hand about three weeks before my first son was born. My hand got worse leading up to the birth and my wife knew she was going to need me more mobile so she wanted me to have my hand checked. I had an EMG which shown slight delay in left arm and the doc assumed it was a pinched nerve in elbow. He said for us to wait until three months after the baby to do the surgery so I could enjoy time with the baby. About two weeks after my son's birth my left hand and arm started going numb as well. So we made plans to go back to the hand Doc, still thinking this is simple nerve compressions. About two days before the appointment I started to feel like I was about to get a fever. I took a Z pack but nothing helped. I had been sleep deprived due to the baby and thought that was just it. Since the baby my fever blisters and Psoriasis was going nuts. When we went back to the hand doc he was worried and brought up MS and said he wanted me to get a full MRI. When I started reading about MS it felt like home, I was certain I had MS. However, my MRIs have been clean. After about three weeks of hell the first outbreak went away and I felt normal other than still having periodic numbness in hands and I developed restless legs? I thought it was behind me, then it hit again last Sunday. So I'm lost.

My symptoms match MS perfectly except for two areas.

1) No vision issues
2) I seem to have the opposite of an aversion to heat. Rather, I get these random cold feelings that rush over me and my wife will find me shivering next to the floor heater. Mind you it's late May in south MS, I shouldn't be cold like that. She finds me sitting too close to the heater all the time now and it doesn't seem to make symptoms worse, rather make them feel better.
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Re: Getting Ready for not being sick

Postby shaight » Mon May 21, 2012 10:59 am

britanyspores wrote:Largelumpyhead,

your going the right way to get your MS diagnosis. Stress, Fear, Uncertainty, shit chemical food & corporate poisoning etc - Prob main Triggers but as usual docs claim to know sod all.

MS was built around Hysteria. It's your key to illness progression.

Most doctors display signs of mental illness.

Glasgow Uni is known for arrogance. Senior staff are generally masonic/fabian, parasitic pricks who train other inbreeds to be the same. Feel free to assess the mental state of Dr Gilhooly, JKRowings hubby & Gerry McCann before opting for your chosen illness.

If you get a neuro with overly large ears, run for the hills or expect a double doze of misery. Many suggest the inbreeding factor causes generations of mental illness which operates well with the brain drain at 1st year glasgow uni.

CCSVI'ers killed my weakening trust in their quackery.

I'm quite lucky because I don't give a f#@k sharing a planet with these nonces anymore. They do more than claim im crazy, some send monkeys to aggrivate my health.

Doctors are not nutritionists, few understand fitness outside a theory book so will be unable to describe what you will feel yourself. It's a fine balance and they just want you on a big score.

I'll be offline after tommorrow to get rid of some of the depression shit likely induced by conduct of staff associated with CCSVI cultists. Have colon, pancreas problems & an eating disorder & pretty much a screwed up stomach. Just picked up a doze of shingles but underlying source is connected to above or potential cancer with lumps on back of left lung.

Just kicking around here for a day or so to assess bullshit pitches from facts (which generally comes from real people).

Vit C / Soda Bicarbonate / raw carrots & careful exercise to start then I'll play it by feel.

Before that I was letting them drag me into their seedy world of hysteria and projected sickness plan.

Not looking forward to it but I feel it's the only way to deal with these d&@kheads who appear with anti-solutions that should earn their decendants an ear clipping and a ticket to the looney bin.

"Largelumpyhead" if your going to be psycho, make sure it's productive because this d#@khead industry don't give a shit about you, they just want a cause to label, a frilly title, and a willing sap in you.


this is the best post i've ever seen in here. absolute comedy! thank you for the smile.
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Re: Getting Ready for not being sick

Postby jimmylegs » Mon May 21, 2012 3:00 pm

okay thanks for the info re very active and fit. can you give me some idea of your diet? a sample showing 3 days' worth (2 work days, 1 day off) of breakfasts, lunches, dinners, snacks, and fluids could be very telling.

sorry this abstract comes across a little condescending in tone, i didn't write it ;)

Practical issues in nutrition for athletes
http://www.tandfonline.com/doi/abs/10.1 ... 9508732281
"Many athletes do not achieve sound nutritional practices to optimize their sports performance. Factors include poor nutrition knowledge, dietary extremism, poor practical skills in choosing or preparing meals, and reduced access to food due to a busy lifestyle and frequent travel. Education in nutrition for the athlete needs to be practical, so as to address eating strategies and key food and fluid choices that will help to achieve the goals of sound nutrition. Strategies that can achieve a number of nutritional goals simultaneously are most useful, since athletes often find it difficult to integrate separate issues. Athletes with extreme nutrient requirements, or with nutritional problems, should seek individual assessment and counselling from a sports nutrition expert."

here's a decent one

Elite Athlete Immunology: Importance of Nutrition
https://www.thieme-connect.com/ejournal ... -2000-1451
"Immunosuppression in athletes involved in heavy training is undoubtedly multifactorial in origin. Training and competitive surroundings may increase the athlete's exposure to pathogens and provide optimal conditions for pathogen transmission. Heavy prolonged exertion is associated with numerous hormonal and biochemical changes, many of which potentially have detrimental effects on immune function. Furthermore, improper nutrition can compound the negative influence of heavy exertion on immunocompetence. An athlete exercising in a carbohydrate-depleted state experiences larger increases in circulating stress hormones and a greater perturbation of several immune function indices. The poor nutritional status of some athletes may predispose them to immunosuppression. For example, dietary deficiencies of protein and specific micronutrients have long been associated with immune dysfunction. An adequate intake of iron, zinc and B vitamins is particularly important but the dangers of over-supplementation should also be emphasized; many micronutrients given in quantities beyond a certain threshold will in fact reduce immune responses and may have other toxic effects that are detrimental to health. Although it is impossible to counter the effects of all of the factors that contribute to exercise-induced immunosuppression, it has been shown to be possible to minimize the effects of many factors. Athletes can help themselves by eating a well-balanced diet that includes adequate protein and carbohydrate, sufficient to meet their energy requirements. This will ensure a more than adequate intake of trace elements without the need for special supplements. Consuming carbohydrate (but not glutamine) during exercise attenuates rises in stress hormones such as cortisol and appears to limit the degree of exercise-induced immunosuppression. By adopting sound nutritional practice, reducing other life stresses, maintaining good hygiene, obtaining adequate rest and spacing prolonged training sessions and competition as far apart as possible, athletes can reduce their risk of infection."

i have a friend who is very athletic and had some health issues. i suggested she start on a supplement regimen as she was doing so poorly i thought it would be a bad idea for her to wait until some baseline testing was done. anyway long story short she is seeing major improvements using a regimen i suggested, and all her bloodwork came back suboptimal. the doc said everything was normal but all her levels are right at the bottom end of the normal range, which does in fact include a lot of sick people. in some cases, the 'normal range' is pretty much all sick people.

docs don't tend to do adequate nutritional bloodwork, and they're even less likely to understand what they're looking at when they do. but, if you're interested in the nutrition angle, the next step is that 3 day diet diary. then the bloodwork. it doesn't pay to just throw things in willy nilly without knowing exactly what you're trying to achieve and then afterwards, whether your efforts were effective.

ttfn :)
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Re: Getting Ready for not being sick

Postby ScaredofMS » Fri Jun 01, 2012 4:30 am

LR1234 wrote: I would take care of myself if I were you....eat healthy (try to lower gluten/dairy intake)

)



Does this help reduce symptoms or flares?
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Re: Getting Ready for not being sick

Postby DougL » Fri Jun 01, 2012 4:37 am

ScaredofMS wrote:
LR1234 wrote: I would take care of myself if I were you....eat healthy



Does this help reduce symptoms or flares?


I think so but that is just my opinion

ScaredofMS wrote:
LR1234 wrote: ...try to lower gluten/dairy intake



Does this help reduce symptoms or flares?

i do not think there is proof that this is true. however, it does have an affect on some people. you should learn all you can about how your body reacts to whatever you put in it - whether that be Apples or Zinc
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Re: Getting Ready for not being sick

Postby jimmylegs » Fri Jun 01, 2012 12:43 pm

oh, sonofa... stupid thing tossed my post AGAIN. anyway. this time it wasn't as long. basically gluten and dairy and sugar are all zinc drains. if you take them out of the diet, your zinc levels will rise. your average ms patient has low zinc, which has a wide variety of potential consequences. so when the zinc goes up, some will notice the improvement. personally i enjoy gluten/dairy/sugar in moderation, and take zinc supplements to ensure my levels are up out of the 'ms' range. when i was really zinc deficient i couldn't even tolerate eating gluten, it was so hard on me. when i realized i was deficient and fixed it, i was able to eat bread without discomfort again.
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Re: Getting Ready for not being sick

Postby jimmylegs » Sun Jun 03, 2012 7:02 pm

yep you can definitely deplete low nutrient resources with exercise. if you're sick as well, it's a double red flag. gotta make sure those tissue and fluid stores of nutrients are stocked up to the point that they can support an immune system, and exercise too.
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