Hughes Syndrome

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Hughes Syndrome

Postby babyblooeyes » Wed May 23, 2012 7:26 pm

So, I was reading an article on Hughes syndrome and this has me intrigued. I remember a while back that I had the Lupus anticoagulant test and the antiphospholipid test done and it was actually positive for antibodies but was never asked to return for a recheck on these. However, I had another doctor (family friend) review the results and said I likely have antiphospholipid syndrome or sticky blood. It has dawned on me that maybe this is the issue and it isn't MS related. He wanted me to start aspirin therapy but it ended up I was allergic to aspirin. My rheumatologist blew the results off completely. Now I am curious and will be calling my GP to discuss this before setting up the appt for the neurologist or should I just go to the neurologist and ask him. I had another episode of heat exhaustion and I wasn't even a couple minutes into my workout but it was 90 degrees outside so I guess the walk from the car to the building must have upped my temp just enough. During my nap I was woken with a massage spasm in my thigh that actually became part of my dream before waking me... I dreamt someone was slowly sticking a large knife through my leg.... OUCH!

Does anyone have hearing issues? Like their hearing goes in and out and you only catch some of what someone is saying?

Anyway... off to do something else for now.

Theresa
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Re: Hughes Syndrome

Postby PointsNorth » Sat May 26, 2012 4:23 pm

Hi babybloo,

I just read that 5% of people with MS actually have Hughes. Hypocoagulation is common across a wide swath of syndromes/diseases. I'm taking some blood tests currently. If I'm positive for hypocoag, heparin is a possible fix.

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Re: Hughes Syndrome

Postby jimmylegs » Sat May 26, 2012 4:26 pm

do you mean 'hyper', PN?
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Re: Hughes Syndrome

Postby PointsNorth » Sun May 27, 2012 6:41 pm

Sorry Jimmy, HYPERcoag
Albany 2010. Brooklyn 2011
Calcitriol+D3 2013-
Hurry up and wait.
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Re: Hughes Syndrome

Postby MSUK » Mon May 28, 2012 1:34 am

MS-UK - http://www.ms-uk.org/
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Re: Hughes Syndrome

Postby NHE » Mon May 28, 2012 2:54 am

Will the INR be normal for someone with Hughes or will it be less than one?

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