MandaPanda2888 wrote:Im sorry to hear this.
I am new to this disease and I may or may not have it dont know and it sucks waiting for the word. I hear that this disease doesnt kill you but then again I dont know much about it so posts like this scare me badly. Thank you for your fundraising.
drtobelee, I'm so sorry to hear about the loss of your sister and seriously appreciate your support of the MS cause and the efforts to find answers to the many questions about MS. But, for the many posters on here who are newly diagnosed and fearful (like MandaPanda above), or living under the many misconceptions about MS, I'd like to point out it's my understanding that death caused directly by MS
rare to nonexistent.
Having MS can indirectly lead to other complications, and it can make it more difficult for us to deal with the other medical problems that many of us have, but it's generally NOT considered a life-threatening disease. For the multitudes who read here regularly to glean insight into MS and its potential for our own lives (and those of our families), I'd appreciate a little more information on how MS may have directly caused
such a tragic turn for your young sister.
I'll also add a short quote from the NMSS site:http://www.nationalmssociety.org/about- ... -sclerosis
It is generally very difficult to predict the course of MS. While the disorder varies greatly from one individual to another, most people with MS have a normal life expectancy. A few patients with very severe disability may die prematurely of infectious complications (such as pneumonia) so that the overall life expectancy is 95% of normal.
As a bit of encouragement to the many new posters who have recently joined TIMS and have expressed the same fear as Manda, I've likely had MS for almost 40 years and I still work full-time/overtime (that's why I haven't managed to post much lately). My life is not easy, but my life is still VERY exciting and enjoyable. I wish that to all of you!