Hi everyone I still don't have a diagnosis. I had a nerve conduction test done everything came back normal. The neurologist said if I'm still having symptoms in another month will do a second MRI with contrast.
I'm just curious if others of had the same results where there were nothing wrong with your nerve conduction test? I've had symptoms eight weeks so maybe it's too soon? Not looking to have problems but I just wonder why i have all these nerve symptoms and they don't know why it is
Welcome to the forum, although I’m sorry you’re having the problems that led you here! I’ve been too busy to post much lately, but I do have a couple of replies to your questions in this thread. First, I want to make sure you know that the “nerve conduction tests” you had done are NOT done to help diagnose MS, but to rule OUT peripheral nerve issues that mimic MS symptoms. I assume they were EMGs (electromyography tests – needles and electric shocks), right?
So…yes, many, many MS patients would have negative results from EMGs unless, like me, they also have peripheral nerve damage as well as MS (lucky me!). My story is in the link below, if you’re interested: general-discussion-f1/topic16335.html
The Central Nervous System (CNS) is only made up of the brain & spinal cord (also includes the optic nerve) and that's where MS lesions end up. All the other nerves in the body make up the Peripheral Nervous System (PNS). The problem with identifying MS is that there isn’t a single test for it and it shares so many symptoms with other neurological issues- including PNS ones. It’s generally a diagnosis of exclusion and sometimes a long period of observation.
A lot of your symptoms (even ones in your other thread) sound more like PNS issues - or musculoskeletal, or spinal issues, like Mark said. Also like Mark, I was diagnosed with MS by a physiatrist, and he did it practically overnight – AFTER he had already identified peripheral nerve blockage as well (carpal tunnel). They’re looking at much more than your nerves, examining your symptoms through a broader perspective than a neuro would. I completely agree with Mark’s post.
Next, I doubt that doing another MRI so soon would show much more than the first one yet. The gadolinium contrast will only make active lesions enhance, not make older lesions more noticeable.
My first set of MRIs 9 years ago was without contrast at all, and it showed a brainful of very specific MS lesions (as well as spinal stenosis). My subsequent sets of MRIs have been done both with & without gadolinium contrast, and they still show the same ol’ non-enhancing lesions.
I’m adding a quote from you from one of your other threads, where you said:
I will just say that I have had Two MRIs cervical and brain without contrast showing nothing except a tiny bulge in my C5.
Although it’s possible to be diagnosed with MS without lesions showing, check out the load of lesions in the MRI pics I posted in my thread. If I were you – a person with NO obvious brain or spinal lesions - I’d definitely be following some other clues and not asking for expensive, multiple MRIs so close together that are likely to give the same result.
My first suggestion to new posters is always to try to optimize your overall health with diet & exercise while you’re pursuing your answers. You might find (like I did) that it soothes many of your symptoms in the meantime.
And my second suggestion is always: Be very cautious about loading up on vitamins & supplements. Add them slowly and monitor your reactions carefully. I’ve had worse experiences with those than with anything MS has done to me in the almost 40 years I’ve been dealing with it. With my allergies & sensitivities, I fear that some of the recommendations that are given to MS patients would probably kill me. (especially Omega 3s!) We're all unique and what works for one may not work for another.
Good luck, and feel free to ask more questions.