Thanks everyone! I am glad I found this community. I could use the support...I have no one to talk to about this who will understand. I actually called the Mayo Clinic and put n for an appointment. I may end up on a waiting list, but that's okay.
@Milesap...Thanks for the article. I had read that earlier, and as a nurse and medical writer, I found this really interesting. Besides the CP bacteria being a possible cause, I have often wondered if MS and/or my other issues (relapsing polychindritis and Sjoegren's) were caused by infection (I had Lyme disease a few months before all of this started 20 years ago). I wonder how hard/easy it is to find a doc who will treat you with antibiotics, or at least Minocyclin if not a cocktail of antibiotics?