gymbuff wrote:Hi Everyone
I was diagnosed more than 24 years ago and am currently on Tysabri (infusion 63 approaching). I get around on my own with a cane and occasionally (now getting more frequent) use a wheelchair. I have read a number of books about MS over the years and made some lifestyle changes which didn't last. I don't have sufficient willpower.
Is it too late to consider further lifestyle changes? Am I doomed to irreversible decline?
I am not really complaining about my condition as I am still somewhat mobile but I would not like to get much worse and ideally any little improvements would be greatly appreciated. Improvement is probably asking for too much!
Any thoughts? Am I too late?
The first question I have is how are you doing now compared to when you started the Ty?
As Cheers said, Dr. Terry Wahls was not doing too well and she turned her life around. But that takes a lot of will power and dedication and you have to ask yourself if you are willing to do that to try and prevent the MS from getting worse.
Harry I think I am a bit less mobile than I was then but nothing too dramatic. I am also taking Fampyra at the moment and after seeing great initial improvement in a short space of time there appears to be no further improvement since. My 3 month prescription runs out next week and I will closely monitor any deterioration (if any).
Next question...Tysabri is usually given to MS patients who have had no success or can't tolerate the other approved DMDs. What prompted your doc to start you on Tysabri? Were you taking anything else for your MS at the time and was your MS stable or showing signs of progression?
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