Location of white matter?

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Location of white matter?

Postby KimTN » Mon Sep 10, 2012 2:03 pm

Well, after finding out that my Vitamin D level was almost non-existant at just 8 and starting on my supplement, I thought I was miraculously "cured". Unfortunately, I have been having symptoms again for the past week. All sorts of burning sensations in various areas on my body, tingling and vibrations behind my right knee, pains in my right thigh and eye twitches in my right eye. Also right leg has felt "weak". Most of my symptoms this time seem worse on the right side of my body but I am having burning and I had bad pain in the bottom of my left foot and toes this morning. Have also had facial tingling around my left eye and get this weird feeling like my entire body is vibrating inside of me.

I had an MRI done at my neurologist's office (2 months ago) and it showed a few white matter spots in the frontal lobe ... so she said they might have been there for years since she has no other MRI to compare to, I would need another one in 6 months or so. I had horrible gait and balance issues which is what prompted me to seek a neurologist's help. Thankfully she witnessed those walking issues in her office. Anyway, after I started the Vit. D, I almost immediately felt so much better and had no more gait issues ... I truly thought I was CURED. So, I am very disheartened to once again be feeling as I do. It's been 2 months and thankfully, time for my follow-up appt. with my neurgologist ... tomorrow!

I am sort of just ranting here (sorry) but I am asking if this sounds like MS and if the location of the white matter spots on the frontal lobe are insignificant? She sort of acted like the frontal lobe was not the typical place for them.

Thanks for any input, I'm still so confused with all that is going on.
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Re: Location of white matter?

Postby KimTN » Tue Sep 11, 2012 10:25 am

Can't anyone take the time to respond to this? I saw my neuro this morning and she is scheduling a repeat MRI for December. She again said that I had 2 lesions in the white matter on my left frontal lobe that they wanted to keep a watch on. I am symptomatic still ... weakness and buzzing vibrations in right leg. Thank you for taking the time to read and HOPEFULLY respond!
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Re: Location of white matter?

Postby LR1234 » Tue Sep 11, 2012 11:09 am

I can!!!
I have lesions in my frontal lobe:( I have 2 very very large ones.
Do you find you have any cognitive issues (Out of interest as I have had them in the past)

I often wake up in the mornings with weird tingling and vibrating but I am not sure if that is coming from my lesion in my spine or my brain.

Sorry to hear you are having symptoms....Hopefully you will get some answers soon x
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Re: Location of white matter?

Postby lyndacarol » Tue Sep 11, 2012 4:54 pm

Kim – When I learned years ago that many people with MS and its symptoms have NO lesions (we even had a couple on this website) AND doctors had found upon autopsy that many people who NEVER had MS symptoms during their lifetime were found to have many lesions, I began to seriously doubt that there is any correlation at all between MS symptoms and lesions. Obviously, conventional medicine thinks there is a correlation.
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Re: Location of white matter?

Postby KimTN » Wed Sep 12, 2012 12:34 pm

Thank you LR and Lyndacarol for your time to respond to my posts! Yesterday, my neuro seemed much more concerned with my lesions ... I am "guessing" that it is because I am now symptomatic again? Anyway, she came out and said it could be MS or Sarcoidosis (which I really don't think my symptoms "fit") but she is going to schedule another MRI for December (6 months from my first one). She will also re-check my Vitamin D to see if the RX supplement has helped.

As far as symptoms, I have weak legs today and a very strange sensation from the base of my head to my lower back ... along my spine. It feels (so hard to really describe) sort of tight, sort of numb, just uncomfortable is all I can say. I have also had twitching and stabbing sensations in my right eye.

As far as mental issues, I did have word mix-ups again yesterday which have gotten really bad in the past as well as I have had hesitation with getting my words out in the past as well. Really do not like that one at all. I am now feeling a headache coming on over my left eye ... oh boy. *sigh*

Thanks again for your responses!

Kim
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