No one at all told me anything at all (altho' now I know that they knew) prior to the diagnosis (based on brain MRI with lesions).
I was kept totally in the dark even though I had asked my GP if I had MS 3 years prior to my dx - to which she had simply answered "no".
And then, as if that wasn't bad enough, at my dx the neurologist told me that he had pretty well known that I had MS when he saw me two years ago at which time he had me go for a thoracic MRI.
On that MRI, he said during my dx that he thought possibly he had seen a lesion on my spine but he wasn't sure and hadn't bothered to send me for any follow up MRI's to determine what there was. Nice, huh?
I was and am so mad at this lazy callous creep for not following up at the time as I went on for two more years finding walking more difficult to the point that I got a cane and then I started falling before my dxwhich made me lose my confidence for going out by myself.
So now I depend on husband for going out anywhere because I'm just so terrified of falling.
I wish that I had been told sooner as I was walking w/o a cane then and could have gone for more help when my walking& pain got worse.
The whole experience has left me incredibly depressed.