No lessions and no o bands

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

No lessions and no o bands

Postby popjinx » Mon Oct 01, 2012 6:07 pm

Did anyone not have any lesions show up on their first mri and no o bands in their first LP, but have them show up later?

The reason I am asking is because I started have very mild neurological symptoms (lhermitte's sign & prickly sensations on my face) and dizziness in Dec. of last year. I went and had an MRI of my brain and spine with out contrast about 2 weeks after the symptoms started. No lesions show up. Then I had a LP about a month ago come up negative as well. As of a few weeks ago my toes have been feeling tingly and as of last night both big toes have went numb (the left one first followed a few hours later by the right one). I have been tested for diabetes because of the tingling and numbness in my toes, but those tests also came back negative.

I am wondering if I could have MS and it was just too early to tell when I had my initial tests done.
popjinx
Newbie
 
Posts: 9
Joined: Sat Dec 17, 2011 7:35 pm

Advertisement

Re: No lessions and no o bands

Postby spokz » Mon Oct 01, 2012 8:11 pm

was your MRI on brain and spine? generally something should show - i believe anyway

they initially thought I had a concussion as I only had dizziness slurred speech and disorientation, I had lesions on my brain second mri showed none were active with contrast, third mri on spine after second relapse new symptoms pins and needles showed further lesions on spinal cord. i've had an LP but was diagnosed before I got the results back from this and never found out what the result was.
spokz
Getting to Know You...
 
Posts: 10
Joined: Tue Sep 25, 2012 6:12 pm

Re: No lessions and no o bands

Postby lyndacarol » Tue Oct 02, 2012 4:21 pm

popjinx – My personal story: there were no lesions on my first THREE MRIs; after a year of testing lesions were found on my fourth MRI. There are other members here with similar experiences. In fact, one member (gwa) has had MS symptoms and diagnosis for years, but has NEVER had lesions appear on her MRIs!
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"
User avatar
lyndacarol
Family Elder
 
Posts: 2311
Joined: Thu Dec 22, 2005 4:00 pm

Re: No lessions and no o bands

Postby popjinx » Wed Oct 03, 2012 4:51 pm

Yes, I had an mri of my brain and spine, but both were with out contrast. I was reading that new lesions might not show up with out contrast on an mri, so I am going to ask my neuro to give me another mri with contrast this time. However, I really don't want to talk to the man again because he condescendingly told me at my last appointment that "I believe that you believe that these things are happening" when referencing my symptoms. It was like he was saying that he thinks I am a nut job that is making this stuff up.

Anyway, thank you for letting me know that it is possible for nothing to show up the first time you are tested.
popjinx
Newbie
 
Posts: 9
Joined: Sat Dec 17, 2011 7:35 pm

Re: No lessions and no o bands

Postby MarkLavelle » Thu Oct 04, 2012 8:50 am

popjinx wrote:Yes, I had an mri of my brain and spine, but both were with out contrast. I was reading that new lesions might not show up with out contrast on an mri, so I am going to ask my neuro to give me another mri with contrast this time.
Contrast will not show any more or different lesions than the 'regular' scan. Active (i.e., currently inflamed) lesions just appear brighter when they add the contrast.

Also, about 5% of people with MS do not show any lesions on MRI.

RRMS dx 3/3/11; Copaxone since 12/1/11
MarkLavelle
Family Elder
 
Posts: 178
Joined: Sat Dec 17, 2011 9:08 pm
Location: San Francisco Bay area

Re: No lessions and no o bands

Postby LR1234 » Sat Oct 06, 2012 10:26 am

13 years worth of symptoms and MRI's (14 Brain in total, 1 spine) "no significant lesions" (had 2 tiny lesions show up after 10 years that were written off), first 2 LP's negative.

Big relapse in 09 and brain MRI now had 8 lesions and LP positive (plus a lesion in my spine) Got diagnosed finally.

My aunt had MS so I was 99% sure I had MS.

You are not a nut job, don't let the dr make you feel that way. You know your body better than anyone and if everything else has been ruled out stick to your guns.

Check Magnesium, B12, Lyme, lupus anticoagulant antibodies (mine are now abnormal).

Blood test that showed something was up were:
CRP levels, antibodies high (IgG, IgA, IgM), TPO (thyroid antibodies) sometimes ESR would raise too. (these are not related to MS directly but they showed my body was not right)
LR1234
Family Elder
 
Posts: 1504
Joined: Wed Feb 11, 2009 4:00 pm
Location: California

Re: No lessions and no o bands

Postby shadyrn » Sat Oct 06, 2012 12:16 pm

I know EXACTLY how you feel about your doctor's condescending attitude, I always feel if I call or see him, I am a pain-in-the-ass nurse who dramatizes every symptom! So I am going to look for another one- you deserve to feel your physician is your advocate!
shadyrn
Newbie
 
Posts: 8
Joined: Fri Oct 05, 2012 9:56 pm


Return to General Discussion

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service