study on MS - informants wanted

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

study on MS - informants wanted

Postby sandra84 » Mon Oct 22, 2012 2:36 pm

Dear all,

I'm also diagnosed with MS 15 years ago when I was only 13. I'm trying to stay positive all the time, but it's not always possible. Since I'm working at a Faculty, and after having read different studies from all fields and perspectives, I thought that it may be useful to conduct a research concerning "stories" of real patients. I have already prepaired a questionairre, i.e. more like orientional questions for informants, as to make them "story telling" easier. My goal is to have as many informants as possible and to compare results and see whether there are some common features which may eventually lead to better treatment. I'm planning to present doctors and specialists with the final results. All will of course be anonimous. If you are interested, please let me know. Hopefully this could help all of us.
I will put here my e-mail since PM hasn't been working properly for the last couple of days, so if you're interested, please let me know
ascukane@ffzg.hr
Last edited by sandra84 on Fri Nov 02, 2012 12:47 pm, edited 1 time in total.
sandra84
Newbie
 
Posts: 5
Joined: Mon Oct 22, 2012 2:06 pm

Advertisement

Re: study on MS - informants wanted

Postby blossom » Wed Oct 24, 2012 9:47 pm

hi sandra84, let me know what you need i'll try to help out. i firmly believe there are too many branded with these symptoms someone named ms. "and put out to pasture with it." might i ask what type of facility you work at? you don't have to put a name on it.
User avatar
blossom
Family Elder
 
Posts: 1370
Joined: Thu Dec 03, 2009 4:00 pm
Location: south western pa.

Re: study on MS - informants wanted

Postby Cilantro » Thu Oct 25, 2012 2:45 pm

I am a woman in my 30's who is diagnosed with Relapsing/Remitting MS. I had my first symptom (optic neuritis) about 6 years ago. I have been asymptomatic for over 2 years as a result of making significant changes to my diet, reducing my stress, and making some major improvements in my life (ending a long term unhappy relationship, moving to a more affordable, laid-back place, etc...)

I firmly believe that most disease and disorder (especially autoimmune ones) are a signal from the body that something is wrong that needs to be fixed. In my mind an autoimmune disorder is like a fire alarm going off during a fire; the physical symptoms are the body's way of alerting you that something needs to be changed. Using drugs to suppress these symptoms is like pulling out the batteries from the fire alarm. It doesn't stop the fire, it just allows us to ignore it a lottle while longer until the damage is too bad to be fixed.

I have made many changes to my diet over the past years in my effort to heal myself (gluten/dairy/soy free, Swank diet, Best Bet diet, paleo diet) and now I find that my body is happiest eating the Perfect Health Diet, which is essentially a higher carb plaeo diet. I do yoga and lift weights, and I have changed the way I respond to stress, which has made a huge difference.

Unfortunately, since their is no money to be maid by doctors suggesting to their patients that they improve their diet and stress levels, I think treatment will never actually improve to the point that it works. I think the only option is for us to take responsibility for our health, and not to let something so important be decided by doctors who guided larger by big pharma companies. It's a sad reality.

I'd be happy to fill out a questionnaire.
Cilantro
Getting to Know You...
 
Posts: 11
Joined: Thu Oct 25, 2012 9:18 am

Re: study on MS - informants wanted

Postby sandra84 » Tue Oct 30, 2012 4:11 pm

Thank you very much!! I can tell you where I work - Faculty of Humanities and Social Sciences Zagreb (Croatia). I'll send you my e-mail on PM or you can send me yours and I can answer you whatever you want to know and I'll send you the questionnaire!
sandra84
Newbie
 
Posts: 5
Joined: Mon Oct 22, 2012 2:06 pm

Re: study on MS - informants wanted

Postby TaraE » Tue Oct 30, 2012 5:42 pm

I have been using Immunocal for 4 years with a complete turnaround of my disease. I would love the medical community to recognize glutathione's importance in understanding MS. Please send me your questionnaire; I'd be happy to help.
tara.einstein@yahoo.com
TaraE
Newbie
 
Posts: 2
Joined: Tue Oct 30, 2012 5:38 pm

Re: study on MS - informants wanted

Postby sandra84 » Wed Oct 31, 2012 6:32 am

Thanks! I've sent you the questionnaire!
sandra84
Newbie
 
Posts: 5
Joined: Mon Oct 22, 2012 2:06 pm

Re: study on MS - informants wanted

Postby dez2000 » Thu Nov 01, 2012 4:38 am

See internet: dr f r klenner papers. Developed cure MS 1973 now used around the world by natural medicine doctors. Died 1984.
The study of Dr F R Klenner’s life, as doctor in Reidsville NC is a classic example of a daring pioneer in medicine who chose to cure, not just treat his patients. Let him become your doctor. The Klenner Protocol is his cure for MS. …dez...
dez2000
Family Member
 
Posts: 56
Joined: Tue Oct 30, 2012 12:50 pm

Re: study on MS - informants wanted

Postby jimmylegs » Thu Nov 01, 2012 4:41 am

dez are you interested in the questionnaire? bc if not there is a section where dr klenner's protocol is discussed on the site. if you're not into sharing your story here, you can use the site search to locate older discussion re klenner.
jimmylegs
Volunteer Moderator
 
Posts: 9025
Joined: Sat Mar 11, 2006 4:00 pm

Re: study on MS - informants wanted

Postby dez2000 » Thu Nov 01, 2012 3:24 pm

I have been ask to answer a questionnaire. I have no personal experience with MS or any other disease except arthritis and that was 40 years ago. I stopped arthritis principally with cod liver oil, supported by multi Stress B vitamins and minerals and one or two grams of vitamin C. I now know then that the minimum should have been 5 grams or more. I was lucky for I have never been addicted to sugar. See (sugar the sweetest poison of all). Even with the low amount of vitamins I never had a serious bout of flu or colds and never lost a days work in 40 years. With enough vitamin c in our system immune shots are redundant for vitamin c is capable of neutralizing just about all viruses. (Internet research) I have read every thing I could google about Dr F R Klenner. His name googles an average of 100,000 hits, not bad for a doctor that the AMA does not admit he ever existed. Linus Pauling two time Nobel winner thought enough of Dr Klenners vitamin C therapies and Irwins Stone’s studies of vitamin c to spend the last 30 odd years of his life researching and writing about vitamins c and many other vitamins. What I have read about Dr Klenner, he was tenacious In his seeking of cures for his patients, researching back hundreds of years. The cure for MS is a story in its self. MS from what have read about it and associated diseases is as difficult to live with as it is to cure. The cures best chance is start therapy early on. Dr Klenner estimated cures took two years to cure for every year of MS, trying the will power of both the patient and the doctor not to mention the cost of time and money. For some there is no cure apparently at this time. Most if not all illnesses stem from improper diet and lack of nutrients. This is about all know of MS.
dez2000
Family Member
 
Posts: 56
Joined: Tue Oct 30, 2012 12:50 pm

Re: study on MS - informants wanted

Postby dez2000 » Thu Nov 01, 2012 8:21 pm

It was suggested to me to do a search for older post about Dr F R Klenner and his MS therapies posted here. I did so and discovered how little I knew of Dr Klenners contribution to unravel this disease and others. I am grateful for that advice. I am now more fascinated than ever for the incredible dedication he gave to unlock the mysteries of his chosen profession and his efforts on behalf of his patients. ..dez..
dez2000
Family Member
 
Posts: 56
Joined: Tue Oct 30, 2012 12:50 pm

Re: study on MS - informants wanted

Postby sandra84 » Fri Nov 02, 2012 12:45 pm

Hi all!

I don't know what's wrong, but I'm getting messages on PM, but I cannot reply, i.e. everything stays in my outbox. Anyways, here is my e-mail and I would ask everyone who is interested in taking part in this study to send me an e-mail.
ascukane@ffzg.hr
sandra84
Newbie
 
Posts: 5
Joined: Mon Oct 22, 2012 2:06 pm

Re: study on MS - informants wanted

Postby jimmylegs » Fri Nov 02, 2012 3:27 pm

nothing's wrong, your replies will stay in your outbox until the recipients read them.
jimmylegs
Volunteer Moderator
 
Posts: 9025
Joined: Sat Mar 11, 2006 4:00 pm

Re: study on MS - informants wanted

Postby sandra84 » Sat Nov 03, 2012 2:42 am

Thanks!!
sandra84
Newbie
 
Posts: 5
Joined: Mon Oct 22, 2012 2:06 pm

Re: study on MS - informants wanted

Postby vesta » Mon Nov 05, 2012 11:16 am

I believe childhood stress can actually damage the vascular system leading to the a blood reflux problem (CCSVI). I wonder if you were living in Croatia during the wars and if this affected you physically?

I will be happy to answer your questionnaire.

The fundamental elements of my treatment can be found under the following blog titles on my site MS Cure Enigmas.net

Acupuncture (which includes Self Acupressure)
Paleo-Macrobiotic Diet
Supplements and DeToxification
Congenital, Developmental, Skeletal, Toxic or Aging M.S.? (Page)

I have used energy therapies which enhance blood circulation - Acupuncture, Self-Acupressure, Kinesiology, Osteopathy (France) Chiropractic (USA), Physical Therapy, Massage, Swimming. These may enhance cerebrospinal fluid circulation as well, thus maintaining a brain "fluid" equilibrium. I've decided to begin Deep breathing Meditation to overcome my natural tendency to tense up which must hinder fluid circulation in my entire body. I treat myself daily with Self Acupressure and swim if possible - the BEST way to get the fluids flowing (and overcome the depression caused by fluid stagnation.) I try to get a neck/back adjustment at least once a month. If I can swim I don't need an Acupuncture treatment, otherwise I try to get one treatment a month. If stressed I ask for a brief neck and upper back massage to push the blood down towards the heart. An emotional shock requires IMMEDIATE attention to stop the blood reflux. (A full body massage will enhance blood circulation, but usually the following day EVERBODY feels tired because the massage releases toxins from the muscles - that isn't particular to MS.)
Thanks for your efforts.

See blog: MS: Cure or Control under the site MS Cure Enigmas.net
vesta
Family Elder
 
Posts: 339
Joined: Thu Jul 12, 2012 10:10 am
Location: Paris, France


Return to General Discussion

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service