pseudobulbar affect

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

pseudobulbar affect

Postby Cathy » Mon Jun 14, 2004 12:58 pm

I have innappropriate crying and exagerated anger for which my Doc wants me to enroll in a study of a new drug call neurodex. Has anyone used anything else for this?
User avatar
Cathy
Family Member
 
Posts: 97
Joined: Mon Apr 12, 2004 3:00 pm
Location: Florida/USA

Postby mscaregiver » Mon Jun 14, 2004 1:44 pm

Hi Cathy, here is a link to the companys page that makes Neurodex with an overview and information.


http://www.avanir.com/product/product.php?ID=3

I am not sure of other meds that would help you with your emotional situation, but hopefully someone here will have some suggestions.

Take care
User avatar
mscaregiver
Volunteer Moderator
 
Posts: 148
Joined: Sat Jun 05, 2004 3:00 pm

neurodex

Postby Cathy » Tue Jun 15, 2004 7:13 am

Thanks. I wnet to this website yesterday after my visit with the neuro. I am going to start in this study on the 22nd of this month. In the past a low dose of paxil worked, but I can not tolerate the side effects anymore, so I am hoping this drug will work. I am a nurse, and I used to take care of stroke patients that had this, but I have not spoken to many MSer's who do.
User avatar
Cathy
Family Member
 
Posts: 97
Joined: Mon Apr 12, 2004 3:00 pm
Location: Florida/USA

Postby mscaregiver » Tue Jun 15, 2004 7:59 am

This site has information and sections on MS & Pseudobulbar..

http://www.pseudobulbar.com/

Also from this site:

http://www.thisisms.com/article82.html
User avatar
mscaregiver
Volunteer Moderator
 
Posts: 148
Joined: Sat Jun 05, 2004 3:00 pm

study

Postby guest » Tue Jun 15, 2004 8:04 am

Yes, this is the study I will be in. I spoke with the nurse reasercher yesterday, and I am eligible for the study. I have to go to Fort Lauderdale where my neuro is 6 times in one year for lab work and that kind of stuff. Thanks so much for the info.

Cathy
guest
 

neurodex

Postby Cathy » Tue Aug 17, 2004 6:02 am

By the way, I ultimatley was not approved to participate in this study. Once they got my cardiologists records, they wouldn't allow me to participate because one of the drugs in neurodex is a cardiac drug my Doc doesnt think I should take. I think he is wrong, because it is such a low dose, but non the less, I can't participate in the study. I am really bummed about this.
User avatar
Cathy
Family Member
 
Posts: 97
Joined: Mon Apr 12, 2004 3:00 pm
Location: Florida/USA

SSRI's

Postby treez » Tue Aug 17, 2004 7:26 am

Cathy,

In one of your posts you said paxil worked but with side effects. Why don't you try one of the other SSRI's? My wife is a pharmacist so I have the inside scoop on pharmacological knowledge. A suggestion.............see if your neuro. will prescribe Lexapro. This one is better tolerated by many people, supposedly has fewer side effects, and is in the same drug family (SSRI's). I have personal experience with this one. Paxil and I didn't get along at all. Others are Celexa(closely related to Lexapro), Prozac, Zoloft, Effexor..................to name a few.

Good Luck

Treez....................aka Steve
User avatar
treez
Family Elder
 
Posts: 128
Joined: Tue Jul 27, 2004 3:00 pm
Location: Michigan, USA

SSRI

Postby Cathy » Tue Aug 17, 2004 9:58 am

Thanks for the suggestion, but I have been on them all and I do not tolerate any of them. When I first used paxil, I started with a 5mg dose, which is way less than what is recommended, but it worked and I stayed on that does. Then I went off for a year or so, and when I tried it again, I just could not tolerate. The nurse from the study said the study may open to everyone, and then I could be a part even though my cardiologist thinks not. Guess I will just have to wait and see. I don't know why the SSRI's affect me the way they do, but I guess I am just one of those people who cant take them.
User avatar
Cathy
Family Member
 
Posts: 97
Joined: Mon Apr 12, 2004 3:00 pm
Location: Florida/USA


Return to General Discussion

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service