LR1234 wrote:Wow you have been through a lot.
Yes I had a bad attack of vertigo a couple of years ago thankfully my balance is back to normal but a year before the vertigo hit I started having issues when trying to read labels arkets, I noticed my eyes were jerking around. During the vertigo though it was so severe. Again thankfully it is very mild again now. Although I have had a recent optic neuritis attack but that affected the vision rather than nystag
How big/numerous are your frontal lobe lesions? Have you had any cognitive issues because of them? X
LR1234 wrote:I have relapsing remitting MS.
I know exactly what you are talking about when you are there but not there. You hear what people are saying and you respond but somehow you don't feel connected. Its not a dream state but rather like you are not fully whole and plugged in.
When I first got the lesions in the frontal lobes it was so bad, I had that feeling all the time and I had no motivation to do anything, I also lost the desire to talk (it was weird I could talk, just didn't feel like talking!) but if its any consolation, your brain can heal or at the very least re-route, mine has as I feel like me again. Also I had another problem where I had no feelings of emotion, it was like someone had taken away my ability to get enjoyment, I was flat. I didn't even want a cuddle off my dogs, I didn't have that connection with them or my family....very wierd . Again thankfully my brain has sorted that out.
There are a couple of good websites I started using to get my brain working again (Posit science &Thetamusic). I recommend you joining at least the music one as there are so many free games and even if you are not musical it really gets your brain working.
Can I suggest you get your blood coagulation looked at as well as your thyroid....my thyroid has always been a problem and I have thick/sticky plus always have high levels of fibrinogen which I am sure is contributing.
KimTN wrote:My MRIs say that there are several lesions (no actual number) but that there are 2 large ones in the left frontal lobe! I have gotten nowhere with a general neurologist (never actually saw him, just his NP) so I am scheduled to see an MS specialist on February 5th. Praying for some answers soon!!!
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