Wow you have been through a lot.
Yes I had a bad attack of vertigo a couple of years ago thankfully my balance is back to normal but a year before the vertigo hit I started having issues when trying to read labels arkets, I noticed my eyes were jerking around. During the vertigo though it was so severe. Again thankfully it is very mild again now. Although I have had a recent optic neuritis attack but that affected the vision rather than nystag
How big/numerous are your frontal lobe lesions? Have you had any cognitive issues because of them? X
I've never had ON. Everything started with me back in June '05....while on a road trip, my eyes started feeling like they were jerking and swirling, which caused me to be very "dizzy" feeling. These episodes would last a few weeks then just go away and come back every few months. But, this most recent episode has been going on for about 6 months now...it just comes and goes throughout the day. I haven't noticed anything that is triggering it either. It happens whether I'm doing something or nothing at all. It is extremely hard to drive with it though! When it happens, I do lose my focus for a few seconds.
Then in Sep- Oct '05...all my other symptoms just hit me, all at once...pain, numbness, weakness, jerks, fatigue, anxiety, etc so dr thought MS and did MRI which showed nothing so she sent me to a rheuma which dx me with fibro. I've had all of these symptoms off and on throughout the years. They seem to never go away, every day it's always one symptom or another.
Then Nov '11 went to different dr and she thought either seizures or MS from all my symptoms I described to her...EEG was normal but that's when the ovoid plaques showed in both frontal lobes on MRI. She sent me to neuro which kept telling me they were due to headaches, which I kept trying to tell her I rarely get! Then dr sent me to another neuro after having another MRI done in Oct '12 which showed the same thing and radiologist impression said to correlate for possible MS(same radiologist that read the other one). First this neuro started with the headache thing and I told him that's why my dr sent me to him because that's what the last one said! So then he said, well I can't say it's not MS but at this point I feel it's fibro and CFS.
Neither of these neuros are MS specialists. So my dr got mad that neither is listening or addressing the findings and that's why she's referred me to the MS Clinic.
To answer your question...I do suffer with cognitive issues...severely! I hardly have any memory of my past, I forget things all the time, do stupid things like lighting a cig when I've just lit one or try to put my lighter in the ashtry instead of the cig, get lost sometimes...took me 3 times missing a turn, to get my son to dr a few weeks ago, and I always feel like I'm outside looking through a window at my life (if that makes sense) it's like I'm there and I know I'm there, but I'm not (like I'm in a bubble or up on a cloud)...just a feeling that is hard to describe. Someone, my husband for instance, will be talking to me and asking me a question and I'll hear him talking but it's like a delayed response for my answer after I ask him again what he said. And sometimes I'll mix the first letter of words up when talking like...Is the loor docked? Instead of Is the door locked?...crazy and frustrating!
Also, I don't know how many or how big the lesions are...it just says ovoid plaques in/on both left and right frontal lobes with minimal demyelination and something about periventricular.