taintedstar wrote:... some feedback on a problem I'm currently facing...
I am currently in the midst of an exacerbation that started over the holidays. My neurologist's on-call doctor told me to go to the ER for a direct admit for a course of IV steroids. Got it. The problem is (and I've told my neuro this a few times) that I can't afford it right now. I know that, ideally, that is the way to treat this but for now it just isn't an option, expense-wise...
Here is my "feedback," as you sought:
I have used Betaseron, Avonex, and Copaxone for extended periods. I have good insurance that covered them; however, I do not feel they were at all effective and have chosen to discontinue all those disease-modifying drugs. When scientists discover the definite cause of MS and an effective treatment is found, I will be glad to use it. If a lack of insurance prevents you from using Copaxone, I do not think it will make you worse off.
Since I believe that excess insulin initiates and worsens MS symptoms AND since glucocorticosteroids (one of which is Solu-Medrol) increase both glucose and insulin in the bloodstream, I suspect that, in the long run, steroids may worsen MS symptoms. (Could an increased consumption of sweets and carbohydrates over the holidays have brought on your current exacerbation?) It has been observed that prolonged or intense use of steroids increases the risk of type II diabetes; type II diabetes is marked by an increase in insulin levels. I believe type II diabetes and MS are connected through elevated insulin levels. Investigate the Diet forum at this website; many people have seen improvements with the change in diet.
Personally, I would not choose to take any steroids. If you wish to try steroids, I do know that IV steroids can be administered by a home healthcare nurse; oral steroids (pills) are available and frequently prescribed. In the end, you can only do what your neurologist will allow, unless you change doctors. All the best to you.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"