Bender wrote:I know three hundred sounds like a lot but with something like fifty thousand people r
Treated with tysabri it really is not very prevalent.
blossom wrote:but, yet the fda and ins. will continue to do what they do. and, when it comes to say chiro. or massage or dental adj. natural things that help and do no harm they back off and you pay out of pocket. "if you can". if there was even 1 death that was even remotely associated with a death while useing these things it would be played up big time. but, "323" lives lost and as happy poet said the ones that live are a mess--well hell that shouldn't put up a big red flag. they know people desperately want help and some are willing to play the odds. medicine is supposed to be about healing not russian roulette.
marcstck wrote:While I'm rarely one to stand up for the drug companies, and routinely pillory Big Pharma on my blog, Tysabri has dramatically impacted many patient's lives for the better, so much so that those who benefit from it are loathe to come off of it even if they eventually test JC positive. Considering the destruction that can be wrought by aggressive MS, and the turnaround that many patients experience after taking Tysabri, the risk of PML seems, to them, to be worth it. Furthermore, as more is learned, doctors are becoming more sophisticated in their use of the drug. Many are not prescribing it for patients who are JC positive, and for those who are JC negative the risk of PML is quite negligible.
Again, I don't trust big Pharma as far as I can spit, and I think some of Biogen's business practices are despicable, if not downright unlawful, but Tysabri has been responsible for the dramatic improvement in quality of life for many patients taking it. Remember, it was MS patients who lobbied the FDA to reinstate the drug, although biogens malfeasance and obfuscation surrounding the true risk of PML was and is deplorable.
As with all things MS, it's a complicated issue…
Of course, the article doesn't take into account the fact that risk with very long term use is still unknown.
Users browsing this forum: No registered users