I am the only patient that this doctor in NYC has given Rituxan to at this point. I am not part of a formal study, but the doctor treats me like a show dog. HaHa! We are all so happy with my rapid results. Literally, 48 hours after receiving my first infusion of Rituxan, all of a sudden it was like a dam broke in the left side of my face and head. Where I had numbness on the entire left side of my head, nose, mouth and tongue. Within minutes, my numbness disappeared and full/normal sensitivity was restored. It was so dramatic that I said loudly, "How my!" and my son said what's wrong? It was like a miracle.
My situation is rather atypical. I am over 50 years old, extremely healthy, have no banding in spinal fluid; however, my symptoms continued to worsen before treatment as my lesion grew. It was growing rapidly and my health was declining. After the first two infusions of Rituxan, my next MRI showed a somewhat reduced brain stem lesion that was not enhanced. I have not (knock on wood) developed new lesions and it has remained stable for the most part. After one year from the first treatment, there is a little enhancement of the lesion, so we are going to do another MRI and repeat the Rituxan treatment.
The doctor and I are playing it by ear for now. I will take Rituxan this year and keep a watch on things with MRIs. Even if I have to continue on with this drug, I am ok with that. It doesn't impact my daily life and I tolerate the drug well, so far. I have a great life, I exercise daily and very happy and fortunate.
I made the decision to go to NYC to get a second opinion and am really glad I made the move.
I hope this helps someone!