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 Post subject: Bloods
PostPosted: Fri Mar 01, 2013 6:16 am 
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Joined: Sun Oct 09, 2011 12:08 am
Posts: 37
I have recently received blood results as all normal, is that likely for someone with aggressive RRMS, a recent LP was also clear, confused !!!!

Comments appreciated.


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 Post subject: Re: Bloods
PostPosted: Fri Mar 01, 2013 5:05 pm 
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Joined: Mon Sep 10, 2007 3:00 pm
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Location: southern California
Hi Zac-
Did you have oligoclonal banding (OB) before? Because the bands aren't supposed to go away in MS...however, not everyone with MS has banding.

Quote:
Once present, CSF OB persists in the individual patient irrespective of MS course or therapy. Because of the high sensitivity of CSF OB in MS as well as its high specificity in the appropriate clinical setting, examination of CSF for OB of IgG class can be strongly recommended to obtain support for the diagnosis of MS and identify patients with clinically isolated syndrome (CIS) at increased risk of developing MS.

http://www.jni-journal.com/article/S016 ... 1/abstract

The other question is, are your MRIs stable, as well as your symptoms?

cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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 Post subject: Re: Bloods
PostPosted: Fri Mar 01, 2013 5:17 pm 
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Joined: Sat Jul 15, 2006 3:00 pm
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Location: midwest U.S.
Zac wrote:
I have recently received blood results as all normal, is that likely for someone with aggressive RRMS, a recent LP was also clear, confused !!!!

Comments appreciated.

Zac, the blood tests are to rule out other causes for symptoms, and don't indicate whether you have MS or not. There are still no tests for MS, but it remains a diagnosis after other possibilities have been ruled out.

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Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS or MS symptoms except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)


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 Post subject: Re: Bloods
PostPosted: Fri Mar 01, 2013 5:42 pm 
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Joined: Sun Oct 09, 2011 12:08 am
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Thanks for replays,

My neuro explained my CSF as clear and commented it as unusual, and me a difficult case to read ?
My most recent MRI indicated all activity as calm / no hot spots although my symptoms seem to be worsening with no remission which I'v never experienced even though my neuro insists I'm RR.
Iv also been examined for CCSVI which proved inconclusive, my thinking was pwms would show from blood deficiency in B12, Vit D etc mine only indicated slightly high cholesterol.


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