Confused and needing HELP! - Is it MS or not?

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Confused and needing HELP! - Is it MS or not?

Postby Willybambam » Thu Mar 07, 2013 6:21 pm

Hello all,

I was recently admitted to hospital with right sided weakness, migraine and dysphasia.A MRI was done which showed "New small pericallosal/periventricular T2/FLAIR hyperintense white matter foci.The appearance is suggestive of demyleination particularly multiple sclerosis.Clinical correlation is suggested."

The second MRI was done with gandolinium and the lesions didnt 'light up' so no more was said of the matter.

I have a followup neuro appt next month but am quite anxious about what this means for me. I havent been feeling well for some time . . .fatigue,dizzyness, falls, balance issues, cognitive decline.

Any advice? :?:
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Re: Confused and needing HELP! - Is it MS or not?

Postby lyndacarol » Thu Mar 07, 2013 6:39 pm

Welcome to ThisIsMS, Willy.

To your question, "Any advice?"… I offer my standard suggestion: request that your GP or internist order a "fasting blood insulin test" – this is NOT to be confused with a glucose test. Because my insulin level is chronically elevated I believe that excess insulin is responsible for most of my symptoms, although my symptoms are different from yours.

"Is it MS or not?"… None of us here are able to give you this answer. Your symptoms could be due to MS or due to any number of other causes. Find a physician who wants to be a "disease detective."

All the best to you.
Last edited by lyndacarol on Thu Mar 07, 2013 6:43 pm, edited 1 time in total.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"
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Re: Confused and needing HELP! - Is it MS or not?

Postby jimmylegs » Thu Mar 07, 2013 6:43 pm

welcome wbb,

it's definitely an anxious time and a pain waiting for appointments. there are a few more tests for them to do in order to figure what may or may not be going on, such as lumbar puncture to look for possible oligoclonal banding in spinal fluid. visual evoked potentials tests. various nerve conductivity tests.

if you have any suspicion that nutrition might play into your case, i can answer questions and point you in the direction of helpful resources.
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Re: Confused and needing HELP! - Is it MS or not?

Postby Willybambam » Thu Mar 07, 2013 10:56 pm

jimmylegs wrote:welcome wbb,

it's definitely an anxious time and a pain waiting for appointments. there are a few more tests for them to do in order to figure what may or may not be going on, such as lumbar puncture to look for possible oligoclonal banding in spinal fluid. visual evoked potentials tests. various nerve conductivity tests.

if you have any suspicion that nutrition might play into your case, i can answer questions and point you in the direction of helpful resources.



Thanks.So just because the lesions didnt light up under contrast doesnt mean i dont have ms? Is that right?

I have no suspicions about nutrition.Should I?
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Re: Confused and needing HELP! - Is it MS or not?

Postby NHE » Fri Mar 08, 2013 4:06 am

Lesions can be due to many things, e.g., migraine headaches can cause lesions. When they enhance with contrast, it indicates that these are areas of active inflammation. The contrast agent shows where the white blood cells are crossing the blood brain barrier.


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Re: Confused and needing HELP! - Is it MS or not?

Postby bartman » Fri Mar 08, 2013 4:46 am

find a lyme disease doctor asap!
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Re: Confused and needing HELP! - Is it MS or not?

Postby want2bike » Fri Mar 08, 2013 6:44 am

The name of what you have is not that important. If you are taking drugs your problem could be a side effect. You can get your health back. Let Dr. Bergman explain it.

http://www.youtube.com/watch?v=QHKolQi1To8
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Re: Confused and needing HELP! - Is it MS or not?

Postby Willybambam » Fri Mar 08, 2013 2:36 pm

bartman wrote:find a lyme disease doctor asap!


Lyme disease? I am on the east coast of Australia.Never heard of it but did some reading last night.Interesting.I think it would be very hard to find a doctor who knew much about it at all.
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Re: Confused and needing HELP! - Is it MS or not?

Postby Willybambam » Fri Mar 08, 2013 2:37 pm

want2bike wrote:The name of what you have is not that important. If you are taking drugs your problem could be a side effect. You can get your health back. Let Dr. Bergman explain it.

http://www.youtube.com/watch?v=QHKolQi1To8


Thanks but im looking for info and help with MS.Dr Bergman doesnt really inspire me with his methods.Each to their own . . .
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Re: Confused and needing HELP! - Is it MS or not?

Postby jimmylegs » Fri Mar 08, 2013 4:35 pm

hi wbb, re lesions on mri, when they dx they would need to demonstrate 'dissemination over time' ie new lesions and old lesions indicating more than one neurological episode. if you have no enhancing lesions under contrast they would all be basically 'old' and therefore may not even be related to your current physical symptoms. there is a notorious disconnect between brain lesion patterns and physical symptoms in ms patients.

as for nutrition, yes ms patients tend to have one nutritional profile and healthy controls another. people with wildly different habits can end up in similar suboptimal boats nutritionally. the manifestation of illness varies with genetics and life history. for ms patients, both sick and healthy profiles are within 'normal' ranges so testing becomes a little more challenging than a yes/no thing (such as testing positive or negative for a specific infection for example). however, ms patients are consistently lower in certain vital nutrients, compared to their healthy counterparts.

i have a background blurb and list of nutrient targets here if you care to read more. i update the content regularly to include new info.

regimens-f22/topic2489.html#p15460

there are lots of theories out there on ms nutrition, this is just one of many.

hope that helps!
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Re: Confused and needing HELP! - Is it MS or not?

Postby bartman » Fri Mar 08, 2013 4:58 pm

willybambam,
great name by the way. I have read many articles about lyme in australia lately, there have been numerous news reports and stories posted in lyme forums. it is very controversial and it's often more than one infetion usually babesia , or bartonella is involved too. furthermore there is Cpn (chlamydia pneumonia) in australia also, I suggest going t o the antibiotic section of this forum and posting for help in finding a doctor. there was a recent tv segment in australia about the wheldon protocol that you can find over there. whatever you do, do not suppress your immune system with ms drugs or steroids as if you do have an infection you will make yourself much worse. if you catch and fight this early you have a much greater chance of beating it! do what you can to learn and educate yourself about these very serious infections, and this is especially a growing problem in australia from the stories and tv segments that I have seen.
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Re: Confused and needing HELP! - Is it MS or not?

Postby Anonymoose » Fri Mar 08, 2013 5:12 pm

Willybambam wrote:Hello all,

I was recently admitted to hospital with right sided weakness, migraine and dysphasia.A MRI was done which showed "New small pericallosal/periventricular T2/FLAIR hyperintense white matter foci.The appearance is suggestive of demyleination particularly multiple sclerosis.Clinical correlation is suggested."

The second MRI was done with gandolinium and the lesions didnt 'light up' so no more was said of the matter.

I have a followup neuro appt next month but am quite anxious about what this means for me. I havent been feeling well for some time . . .fatigue,dizzyness, falls, balance issues, cognitive decline.

Any advice? :?:

Hi Willy,

My advice...read jimmyleg's regimen thread and try some stuff out whilst you study up in the CCSVI forum. That should give you something likely helpful to do no matter the diagnosis and something to think about as you wait for diagnosis...something that *might* be causing your issues. You also might want to read up on idiopathic intracranial hypertension as it's another possibility (and could be related to CCSVI). There are a lot of possibilities...those are just the ones that come to my mind.

It's going to take time to get your diagnosis. Try not to stress about it. Be strong. :)
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