Thank u lyndacarol...for ur quick reply.
It is my understanding that the DMD's are not prescribed for Chronic Progressive MS because they are not effective in that stage.
I'm glad that we share the same understanding. Does anyone have any article/med journal regarding to this matter?
Linda – I believe insulin is a major player, as you know; I think diet should not trigger insulin production.
Did u write it correctly? or i wrongly understand it. Pardon me.
In my opinion, this diet should be a very low-carb diet --remove ALL trans fats; remove all sugar (including beer, wine, etc. which have sugar), remove all artificial sweeteners, including sugar alcohols like sorbitol, xylitol, etc. (These promote insulin production, too.), and remove white flour, white bread, white potatoes, white rice (in fact, all carbs so far as possible).
I wish i could done ur advice about diet, but now i can't do it. I already try to reduce my sugar and milk intake. As for u to know :
1. I can't cook my own dishes due to my condition now. So i live with my parents (79 yo dad n 70 yo mom), my husband works from Monday to Friday from 7.30am to 7pm. I only depend on my mom to prepare n cook my food.
2. My very old parents have their own health problems, but i'm grateful to God that my mom can still take care of me (her 31yo daughter)
3. Rice is my basic food, so for all other indonesian people here
4. I'm not coming from a wealthy family, as i know that healthy food means a more expensive food
Now i'm looking for a second opinion to another neurologist, because my first neuro have a very narrow-minded about any new theory regarding MS. He even didn't believe about the differential diagnosis of MS (DDMS) that i gave him. He didn't believe about the CCSVI theory also. I face a dead-end when it comes to discuss about MS with him.
My second neuro now working in Eka Hospital which has a cooperation with mayo clinics. He doesn't fully understand about MS, but he has an open mind and he accepts me and he tries to help me to find a correct diagnosis for my disease. So he refers me to consult with doctors from the mayo clinic. And now i'm in the middle of gathering all my lab results all this time n making my disease's resume so he can send it to the mayo clinic's team of doctors. I presented him the DDMS and he really excited about learning it.
Now, i can only surrender to God to show me the way and the answer to my disease. I just want to have the right diagnosis n the right treatment for my disease, that's all. Because, how can u treat a disease if u don't know what exactly u are suffering from?
For anyone information, i had catheter venography 2 weeks ago here in Indonesia with my IR (dr.Prijo). And dr. Sclafani saw that i might have a stenotic valve in both my IJVs. I only have a temporary conclusion from him now. I hope dr. Sclafani can study more about what's really wrong with my body (especially my veins) and i'm so thankful to him for his kindly help. God bless u.
Sorry for my very long story. I just really need a friend to share my feelings.
Thank u very much.