Cholderby wrote:My best friend's husband also has ms. He was diagnosed in 2006. He only had the one MRI in 06 and never any since and did not get a second opinion. He has been on coaxpone since then and never had a second exacerbation.
Everyone I know assumes that I will have the same experience. I have no data to support this, but I assume this is unusual.
I certainly don't want to get ms-ier than thou but I have wondered if his neuro handed him the right diagnosis, especially since common tests like Lyme and b12 deficiency were never run. Or maybe he is a copaxone success.
Cholderby wrote:Yes! As a newbie, I was shocked to find in the drug propaganda, buried amidst the pictures of women hiking up mountains and doing yoga, that they promise a "29% reduction in relapses". I kept thinking that I want a little more ROI on a daily injection. And those are the results of THEIR studies.
I am happy there's something. I just wish it was better!
HarryZ wrote:All of the drug companies that market their MS wonder drugs have been slapped on the hands at one time or another by the FDA because of their misleading and false advertising when it comes to these medications.
So they advertise that you will get a 29% reduction in relapses. So if you get 2 relapses a year, this means you'll end up with about 1.3 relapses for the year after spending over $ 30,000 and suffering from a variety of side effects. What was that you said about a poor ROI?!
Cholderby wrote:Anyone have any data that might put his and my experience in context?
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