I have Multiple Sclerosis. Maybe not!

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I have Multiple Sclerosis. Maybe not!

Postby alex342 » Tue Jun 11, 2013 4:52 pm

Hi to all!

Early February 2013 during a trip in Asia I started to feel brief episodes of unsteadiness and loss of balance. After a couple weeks, this sensation of “feeling drunk” or “floating” was no longer temporary as I was feeling it constantly. I went to see an ENT specialist thinking it could be a problem with my middle ear but he found nothing.

After Asia I traveled to Europe in May (4 months later) where I started to feel pain in my arm and leg muscles. It was the kind of pain you’d feel after doing an intense physical workout like weight lifting. This pain would come and go; sometimes I’d feel it just in my left forearm, an hour later it would travel to both my legs then disappear, constantly changing. This lasted for three weeks and hasn’t been back since, thank god!

After researching my symptoms online, I found multiple sclerosis could be one of causes to my troubles. For this reason, I took an appointment in Paris with a neurologist and got an MRI of my brain (See MRI images attached). Unfortunately, the results were not as I had hoped and the images showed anomalies (lesions). The doctor didn’t have much to say without doing additional tests. On the report, he concluded by saying “These lesions are not very specific because of their number (4) and the absence of any lesion on the posterior fossa.”

I’m back in Canada now and I need to follow up by doing more tests: MRIs + lumbar puncture etc… I’m worried that the health care system in Canada won’t properly take care of me. Its 2-3 months to get an appointment with a neurologist! WHAT! It was 1 week in France! The waiting time for an MRI in public hospitals is 8 months minimum or you need to pay 700$. So I just signed up for a personal health insurance but I had to lie on the form about my symptoms otherwise they would have excluded any expenses related to my condition. I hope they don’t find out I had these symptoms before signing up! It’s when you really need help that it’s the hardest to get! That’s crazy!

The good news is that my symptoms currently are very minimal as I just feel minor unsteadiness. Some days I feel totally fine! I’ve learnt to live with my tinnitus which started 4 years ago and I could learn to live with my current condition if it doesn’t get worst but I might just be in remission waiting for a relapse. I just spent more than a year travelling the world, I’m getting married next year, we bought a house and are thinking of having children soon, I have so much to do and so many projects on my mind and I’m only 32. This is a seriously debilitating illness; 60% of people can no longer walk 20 years after onset.

The neurologist in France mentioned that he had seen these types of lesions just disappear. I’m an optimistic person and I want to think this is possible. I’m also realistic and my symptoms and initial MRI do point towards MS. What else could it be? Is there any other disease that could be responsible? I’m slowly preparing myself for a diagnostic of MS and I’m scared that it stops me from living a “normal” life.

I read a lot of information about multiple sclerosis and lots of people are living well with this disease. You need to exercise, eat well, get plenty of rest; the recipe for healthy living. Some medicines exist to delay relapses but they are not without side effects and cost quite a bit of money. To help with remyelination which can improve some of the symptoms and if you have 20-30k $ lying around, you can go to a stem cell clinic in Central America or Germany (like Jack Osbourne). Also, I believe within the next 5-10 years, we’ll find an actual cure for MS or at least it’ll become easier and cheaper to get stem cell treatment in USA and Canada. 1 to 3 people for every 1000 people will have MS and 2/3 of these people are women so you are pretty special if you get this.

-Have you heard of brain lesions just disappearing? I hope I’m not being too optimistic.
-Are you familiar reading MRIs? Do you have an opinion on the MRIs I’ve attached?
-Have you been diagnosed with MS and you are living well with it? Do you have a secret trick to manage?
-Just in case, I’ve taken a complementary health insurance and a 20 year life insurance so if I get bad news and something happens to me, my loved ones and I can get some extra help. These will be a LOT harder to get after a diagnostic. Has anyone else done this after feeling symptoms? I have NOT yet seen any doctors in Canada about my symptoms.

Once my health insurance approves me I’ll go see a general practitioner to get a prescription for a neurologist who’ll prescribe additional tests and we’ll take it from there. I’ll update this post with my results.

Thanks to all for your support!
Alex
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Re: I have Multiple Sclerosis. Maybe not!

Postby bartman » Tue Jun 11, 2013 5:52 pm

what else could it be? ummm are you familiar with Lyme disease and Coinfections? This disease is all over Canada and starting to get more publicity. Educate yourself about this infection, coinfections bartonella and babesia and the biggest medical controversy in the history of medicine...talk to someone in a lyme disease group/forum like canlyme.org. do more research, become an expert and don't give up. do a google search about this infection in canada, I see many many articles in the news about this lately. MS meds will make it worse, don't trust lyme disease testing it is inaccurate and unreliable. treat your symptoms like an infection first and it takes a long time to get better, hardest part is getting a doctor to prescribe antibiotics for you. MS is very often misdiagnosed and white matter lesions can be caused by infection.
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Re: I have Multiple Sclerosis. Maybe not!

Postby alex342 » Tue Jun 11, 2013 6:03 pm

Thanks Bartman for your response.

I didn't know Lyme disease and Coinfections could have symptoms such as loss of balance and muscle pain. I'll definitely read up on it. Thanks!
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Re: I have Multiple Sclerosis. Maybe not!

Postby Cece » Thu Jun 20, 2013 6:37 pm

-Have you heard of brain lesions just disappearing? I hope I’m not being too optimistic

In MS, brain lesions appear and then disappear sometimes as the brain remyelinates. So yes they can disappear and it's good when they do but unfortunately it does not preclude MS.
Best wishes with your diagnosis process and buying house/ having children/ all the plans you listed. People can live well despite this disease. Everyone's course is individual.
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Re: I have Multiple Sclerosis. Maybe not!

Postby want2bike » Fri Jun 21, 2013 4:02 am

MS is caused by too many toxins in the body or nutritional deficiencies as explained by Dr. Bergman. Could be Lyme disease, too much mercury in your mouth, too many vaccination, aspartame, ...........etc. You have to find the toxins and eliminate it. Studies show the drugs will do no good. Study the information and take appropriate action and you can get better.

http://www.youtube.com/watch?v=zGmyUppmt-g

http://orbisvitae.com/ubbthreads/ubbthr ... cQ_pYwo7IV

http://www.dailymail.co.uk/health/artic ... ds-newsxml

http://www.youtube.com/watch?v=GJyQTTZr ... _embedded#!

http://www.nytimes.com/2012/07/18/healt ... html?_r=3&
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Re: I have Multiple Sclerosis. Maybe not!

Postby alex342 » Fri Jun 21, 2013 10:09 am

Thanks for the links! And obviously I was very interested in the story about the mother who was mis-diagnosed with MS when she really have Lyme Disease.

Even if I get tested for Lyme disease, the results could still be negative. It's a tough one to diagnose! I'll definitely talk to my doctor about it and cross my fingers it could be my problem! ;-)

Cheers
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Re: I have Multiple Sclerosis. Maybe not!

Postby HarryZ » Fri Jun 21, 2013 6:17 pm

want2bike wrote:MS is caused by too many toxins in the body or nutritional deficiencies as explained by Dr. Bergman.


Oh, I didn't know or at least have not heard as yet that the cause of MS is too many toxins in the body!!

To set the record straight...there is still no known and/or proven cause of MS. Many theories abound but NONE of them have been proven.

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Re: I have Multiple Sclerosis. Maybe not!

Postby HarryZ » Fri Jun 21, 2013 6:31 pm

I’m worried that the health care system in Canada won’t properly take care of me. Its 2-3 months to get an appointment with a neurologist! WHAT! It was 1 week in France! The waiting time for an MRI in public hospitals is 8 months minimum or you need to pay 700$. So I just signed up for a personal health insurance but I had to lie on the form about my symptoms otherwise they would have excluded any expenses related to my condition. I hope they don’t find out I had these symptoms before signing up! It’s when you really need help that it’s the hardest to get! That’s crazy!


First of all, MS is a very difficult disease to diagnose. Symptoms can come and go randomly which adds to the difficulty. It will take a number of tests to come up with a definite answer.

While not perfect, the health care system in Canada is quite adequate. I've lived under it for over 60 years and have benefited several times from what it has to offer. Out of curiosity, what did your neurologist's visit in France cost?

You are playing a dangerous game by lying on your insurance application. You do realize that if make an insurance claim for your possible MS associated costs, the insurance company will likely investigate and if they find the truth, your claim will be denied and your policy will be cancelled.

I understand that your anxiety is high with your recent health events. Take one step at a time, get a proper diagnosis and then continue with a plan of action. Become well informed with as much info as possible. If required, come under the care of a well established MS Clinic. In the meantime, eat a healthy diet, get good exercise and enough rest. Best of luck.

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Re: I have Multiple Sclerosis. Maybe not!

Postby alex342 » Sun Jun 23, 2013 3:21 pm

My Neurologist's visit in France cost 150 euros. It would have been 23 euros if I had been covered by the french medical system. I'd rather pay something and get faster service. If I understand things probably, it'll be free when I see a Neurologist in Canada?

If the insurance knew the truth, they wouldn't have insured me or would have excluded all costs related to MS so the end result would have been the same.

Is there a list of MS clinics for Canada?

Thank you!
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Re: I have Multiple Sclerosis. Maybe not!

Postby HarryZ » Mon Jun 24, 2013 4:38 am

alex342 wrote:My Neurologist's visit in France cost 150 euros. It would have been 23 euros if I had been covered by the french medical system. I'd rather pay something and get faster service. If I understand things probably, it'll be free when I see a Neurologist in Canada?


That's about $ 200 which I'm presuming is the cost to get into the front door. Getting medical care in Canada doesn't cost at the time of the visit but it is far from "free". The tax system ensures that the funding is there....just look at your receipt when you fill up with a tank of gas! Guess where some of the funding comes for that "free" medical service?

If the insurance knew the truth, they wouldn't have insured me or would have excluded all costs related to MS so the end result would have been the same.


Hmmm...not sure it's a good idea to lie when applying for insurance. If discovered, that "lie" will go on a record somewhere and could make things difficult for you when applying for another kind of insurance service.

Is there a list of MS clinics for Canada?


In the major medical cities there are MS clinics...Toronto, Montreal, Vancouver, London...etc. Where will you be living? I'm familiar with a few of them.

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