iKat wrote:I have been reading where some people consider this a cure. I also have read where it doesn't work for everyone and it has serious side effects. I have an oppertunity to go to Chicago for this treatment but I am a little fearful of the extreme chemo and the long term side effects from the chemo which can be worse than MS itself. But then again maybe a possibility to get rid of MS once and for all. Also if it was so great why aren't more people doing this?
iKat wrote:Some people consider it a cure because they said their symptoms stopped after the procedure. They refuse to call it remission, when in fact it most likely is. Still it I think it's something I would like to consider, but the possible death by chemo part is not thrilling.
And if 5 years of the same criteria is good enough to be considered cured of cancer I'm inclined to think its good enough for MS too.
mmpetunia wrote:On the issue of HSCT being curative:
Cancer is considered cured after 5 years without reoccurrence. People undergoing HSCT have shown positive effects from it, up to and including complete halting of progression and some or complete recovery from disabilities. People have been shown to remain in this state of stability/ improvement for 10+ years in clinical trials.
The medical profession has not given a definition of what it means to be cured of MS but 10 years no progression and symptom improvement sounds to me to be as close as we can get right now. And if 5 years of the same criteria is good enough to be considered cured of cancer I'm inclined to think its good enough for MS too.
The chemo is a risk but for me, if you weigh the risk of dangerous or life threatening complications (PML anyone?) with the long term benefit of current treatments I think HSCT is still the better option.
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