plethora wrote:Thanks BadKitty. He hasn't given special instructions. I made an appt with him this next week.
You needed a nurse to help figure it out? What happened with that flare?
BadKitty answer is spot on, they are all different. In the first few years I needed help figuring out. Now I pretty much know for sure.
Assuming I haven't caught a cold or the flu, and as long as it isn't something critical like suddenly I can't walk or see (I would immediately activate my plan for exacerbations in those cases), I make sure I am in a cool place (come in from outside, etc) and make sure I am very well hydrated, take temp, BP, and I go to bed for a day, and if things were still there after 24 hours I would activate my plan.
My plan includes a call to my Neuro (1 hour away) that I am going to the ER and need solumedrol. I always need to be admitted due to other health concerns. The ER locally calls him and the hospitalist gets the instructions for the solumedrol. I can also go to the ER that my Neuro has privilidges and he has a protocol there for all his patients. Once we start the solumedrol infusions we decide if I need 3 or 5 days along with pain medication while I am there if needed, etc.
The one very constant thing that happens with my flares/exacerbations is I get cognitively messed up and usually can't do anything but sleep. But that is just me. It could be that I have an MS Hug or my balance is so bad I am crashing into walls, but I still get the brain fog that makes me totally unable to cognitively and some times emotionally deal. My husband, family and friends all see when this is happening. But that's me.