lost need help

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lost need help

Postby mybelle38 » Sun Oct 06, 2013 9:13 am

hello everyone,
9 months ago my sister been diagnosed for MS... few months lateer in June i started to have all type of symptomes,started with a kind of electric chocks in my right arm,than my right hand and foot feeling numb like asleep...Slowly it got worst hands feet knees and a part of my face was feeling numb.. i went to see a few neurologist one didnt make any exams and said it s in my mind another in Germany said it was carpal tunnel syndrom(wierd since my face and feet were numb as well) yet she gave me 7 days under prednisone it got a lil better but not for long numbness were back and forth and pain was arrived.. i can not move my right leg sometimes it s kinda hard.. August 2013 i got face s spasms a lot i was so ugly i stayed locked but it kept going so i got hospitalized for a few days withhigh dose corticoid intra.. they made a whole lot of exams than let me go with a rdv with an MS specialist. after seen him he made sure all other potential desease virus ect that look like MS was out of the board and than said i have MS to him BUT he doesnt know what type,i only have amytriptaline for the pain that i have in my arms and legs,i have more and more spasm not just my face now but my back chest and feet all that of course back and forth but not one day without pain or symptoms.. i have no treatment for MS and i m really confused does someone has that type of MS?no treatment? the doctor think my spinal has more lesions than my brain(mri in a few days) my brain has 4 i also had a few hours not able to see and my right eyes is wierd since than (also no more balance and so on) thank you very much
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Re: lost need help

Postby lyndacarol » Sun Oct 06, 2013 11:24 am

mybelle38 wrote:9 months ago my sister been diagnosed for MS... few months lateer in June i started to have all type of symptomes,started with a kind of electric chocks in my right arm,than my right hand and foot feeling numb like asleep...Slowly it got worst hands feet knees and a part of my face was feeling numb.. i went to see a few neurologist one didnt make any exams and said it s in my mind another in Germany said it was carpal tunnel syndrom(wierd since my face and feet were numb as well) yet she gave me 7 days under prednisone it got a lil better but not for long numbness were back and forth and pain was arrived.. i can not move my right leg sometimes it s kinda hard.. August 2013 i got face s spasms a lot i was so ugly i stayed locked but it kept going so i got hospitalized for a few days withhigh dose corticoid intra.. they made a whole lot of exams than let me go with a rdv with an MS specialist. after seen him he made sure all other potential desease virus ect that look like MS was out of the board and than said i have MS to him BUT he doesnt know what type,i only have amytriptaline for the pain that i have in my arms and legs,i have more and more spasm not just my face now but my back chest and feet all that of course back and forth but not one day without pain or symptoms.. i have no treatment for MS and i m really confused does someone has that type of MS?no treatment? the doctor think my spinal has more lesions than my brain(mri in a few days) my brain has 4 i also had a few hours not able to see and my right eyes is wierd since than (also no more balance and so on) thank you very much

Welcome to ThisIsMS, mybelle.

Although you have not specifically asked for opinions or advice, I offer my thoughts (I am not a medical professional).

I believe the pain you describe in your feet/legs and arms is "peripheral neuropathy." This is found in many conditions; MS is one; diabetes is another. You say you have seen an MS specialist and he has ruled out other possible conditions that "look like MS." At the University of Chicago, the following is included in their neurological exam:

http://peripheralneuropathycenter.uchic ... #bloodtest


I read the following section on blood tests with special interest:

Blood tests

Blood tests are commonly employed to check for vitamin deficiencies, toxic elements and evidence of an abnormal immune response.
Depending on your individual situation, your doctor may request certain laboratory tests to identify potentially treatable causes for neuropathy. These include tests for:

Vitamin B12 and folate levels (Jimmylegs here at TIMS recommends magnesium, zinc, and copper also.)
Thyroid, liver and kidney functions (especially thyroid hormones testing is recommended by Kathryn Simpkins in her book, The MS Solution)
Vasculitis evaluation
Oral glucose tolerance test (I suggest a "fasting blood insulin test" also.)
Antibodies to nerve components (e.g., anti-MAG antibody)
Antibodies related to celiac disease (I think this is VERY important and should include a mannitol-lactulose test for Intestinal Permeability.)
Lyme disease (Bartman, among other TIMS members, urged this testing.)
HIV/AIDS
Hepatitis C and B

As for treatment, many of us choose NOT to use any of the approved medications. It is my opinion that since the cause of MS is still unknown, scientists have not developed an effective treatment. Many people with MS find that a low inflammatory diet (NO trans fats, NO artificial sweeteners, VERY little sugar, some people even eliminate gluten/wheat products and eliminate dairy) improves their MS symptoms. Read through the Diet forum here at ThisIsMS for suggestions.

All the best to you
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"
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