Well, I give you extreme credit, Willy, in not suggesting that your way may be the correct way for all (nor is mine). As I believe you were saying previously, what works for one, may not work for all. And therein lies the rub!
So.....conclusion on that one being that at this point in time, there may be no adequate answer or suggestion that would encompass the majority effectively (?) Ok, I can understand that one.
I have to admit that I am totally uninformed about the Boston Cure or their "map", so I am unable to speak intelligently about that. (That's assuming I ever speak "intelligently" in the first place...HAH!) Now you've really tickled my curiosity! Looks like I'll have to become more fully informed, so I can express an opinion. hehehe............
Onemike: I'm afraid I am totally unfamiliar with either of the two people you mention. (I don't get out much.
) When I have a moment, I will visit the link you posted. And thank you, also, for your very kind comments.
And truthfully, I would like to think that all of this discussion will not prove to be just an exercise in futility. In my experience, a professionally written correspondence to "powers that be" (and in our case, that's the NMSS) expressing (as neutrally as possible) our wishes and recommendations can and does often prove influential.
Well, enough of me for today, I think. Lunchtime is over, but I just had to post one last time.
One last question to throw out there: Why does
MS research appear to be so fragmented? I mean, on the one hand, it would just about have to be, I suppose; but then again, might that not only foster confusion? I know it does me.
I do believe, though, that I see signs that the NMSS is attempting to pull more researchers together as groups or teams. Their most recent research initiative and invitation to researchers was to apply for the grant as a "group", and specifically encouraged (or should I say "required") that for this particular grant funding, that researchers needed to partner with others in the same field and also encouraged those groups to include international researchers.
So....is there an attempt after all by the NMSS to pull together MS research and foster more effective information exchange?
My unsolicited opinion? I'd say yes. Will it prove to work? It just might!