DO I HAVE MS? NEED HELP URGENTLY

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DO I HAVE MS? NEED HELP URGENTLY

Postby trixr4kids » Wed Oct 30, 2013 4:37 pm

I don't know if I'm posting in the right place but I just made an account because I really need help and feedback. I'll try to make my story as short as possible. all feedback/ comments are highly appreciated.

Ok, so in mid-july of this year, I had a weird rash (it looked like a bunch of mosquito bites all over my arms and torso) I went to the ER and they said it was scabies (which happened to be wrong), so I took the predinisone (spell?) and a cream I was prescribed for a week. The following week while at a friends house I came down with the worst headache/ head pressure of my life, I could barely drive back home. I went to the ER the next morning because it was still there but not as bad. They treated me for dehydration but i decided to follow up with my GP a few days after. She thought I had a sinus infection due to the head pressure i described, so I took a round of amoxy which made the head pressure a little better but not completely, I got a CT scan which came back clear. The same week I started to feel this tingly/ prickly feeling on the left side of my torso and a weird cold, tingly feeling on my left leg and hand as well. so I got a referral to a neurologist. The neuro had me do a blood test for Lyme disease as well an MRI of my brain and thoracic area of my spine, I also had to do a few tests for my vision and hearing with all these wires attached to my brain as well a stimulus (shock) at the bottom of my feet which all came back great. The Lyme came back positive but only one of the "bands" were present so he said its most likely not lyme and told me I most likely have MS because my Brain and Spine had lesions/ abnormalities found on the MRI. I have not had blurry vision, no fatigue, no loss of balance/ clumsiness, no loss of sexual drive or any of the other common symptoms of MS besides the tingly feeling on the extremities that come and go. It has been 5 months and the prickly feeling on the left side of my torso is gone, I just feel a "tightness" around the rib area. I am a male and was born and raised in south america, I know it can affect anyone of any race but I read that most MS patients are caucasian/ born raised in north america/ europe and are also female. I re-tested for Lyme as well as other diseases and if they all come back negative I guess my only option would be to get a spinal tap to rule out MS.

From your experience what do you think is going on and do you think I have MS?

I am very thankful you took the time to read and respond to this. I really appreciate it. God Bless.
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Re: DO I HAVE MS? NEED HELP URGENTLY

Postby lyndacarol » Wed Oct 30, 2013 5:38 pm

trixr4kids wrote:I don't know if I'm posting in the right place but I just made an account because I really need help and feedback. I'll try to make my story as short as possible. all feedback/ comments are highly appreciated.

Ok, so in mid-july of this year, I had a weird rash (it looked like a bunch of mosquito bites all over my arms and torso) I went to the ER and they said it was scabies (which happened to be wrong), so I took the predinisone (spell?) and a cream I was prescribed for a week. The following week while at a friends house I came down with the worst headache/ head pressure of my life, I could barely drive back home. I went to the ER the next morning because it was still there but not as bad. They treated me for dehydration but i decided to follow up with my GP a few days after. She thought I had a sinus infection due to the head pressure i described, so I took a round of amoxy which made the head pressure a little better but not completely, I got a CT scan which came back clear. The same week I started to feel this tingly/ prickly feeling on the left side of my torso and a weird cold, tingly feeling on my left leg and hand as well. so I got a referral to a neurologist. The neuro had me do a blood test for Lyme disease as well an MRI of my brain and thoracic area of my spine, I also had to do a few tests for my vision and hearing with all these wires attached to my brain as well a stimulus (shock) at the bottom of my feet which all came back great. The Lyme came back positive but only one of the "bands" were present so he said its most likely not lyme and told me I most likely have MS because my Brain and Spine had lesions/ abnormalities found on the MRI. I have not had blurry vision, no fatigue, no loss of balance/ clumsiness, no loss of sexual drive or any of the other common symptoms of MS besides the tingly feeling on the extremities that come and go. It has been 5 months and the prickly feeling on the left side of my torso is gone, I just feel a "tightness" around the rib area. I am a male and was born and raised in south america, I know it can affect anyone of any race but I read that most MS patients are caucasian/ born raised in north america/ europe and are also female. I re-tested for Lyme as well as other diseases and if they all come back negative I guess my only option would be to get a spinal tap to rule out MS.

From your experience what do you think is going on and do you think I have MS?

I am very thankful you took the time to read and respond to this. I really appreciate it. God Bless.


Welcome to ThisIsMS, trixr4kids. We are not qualified to say if you have MS or not. We are willing to share our experiences and our opinions of MS with you.

I suggest you work with your GP; take a timeline of your symptoms list to her for discussion; consider the following guidelines from the University of Chicago as a starting point for your investigation that:

http://peripheralneuropathycenter.uchic ... #bloodtest


Especially important is this section on blood tests, some of which you may have already done :

Blood tests

Blood tests are commonly employed to check for vitamin deficiencies, toxic elements and evidence of an abnormal immune response.
Depending on your individual situation, your doctor may request certain laboratory tests to identify potentially treatable causes for neuropathy. These include tests for:

Vitamin B12 and folate levels (Jimmylegs, here at TIMS, recommends magnesium, zinc, and copper also.)
Thyroid, liver and kidney functions (especially thyroid hormones testing is recommended by Kathryn Simpkins in her book, The MS Solution)
Vasculitis evaluation
Oral glucose tolerance test (I suggest a "fasting blood insulin test" also.)
Antibodies to nerve components (e.g., anti-MAG antibody)
Antibodies related to celiac disease (I think this is VERY important, as well as a mannitol-lactulose test for Intestinal Permeability.)
Lyme disease
HIV/AIDS
Hepatitis C and B

The tingling/prickly (or even burning) feeling in the extremities (legs/feet or hands/fingers) is also called peripheral neuropathy. The rib area "tightness" may be the MS "hug." It is generally known that the frequency of MS increases with the distance from the equator (either north or south). The typical MS profile used to be as you describe: white female of northern European descent between the ages of 20 and 40; in my opinion, this is changing significantly. Children as young as 2 years old have been diagnosed with MS; women are still diagnosed more frequently than men; nonwhites are diagnosed more often today than in the past. There is no definitive test to rule out MS, not even a spinal tap.

It is a possibility that you have MS, but there are many other conditions with similar symptoms.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"
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Re: DO I HAVE MS? NEED HELP URGENTLY

Postby want2bike » Thu Oct 31, 2013 12:51 pm

Just because the test says you do not have Lyme disease does not make it so. The test is not always accurate. The doctors have been wrong many times.

http://www.niaid.nih.gov/topics/lymeDis ... stics.aspx

http://www.dailymail.co.uk/health/artic ... -BITE.html


http://www.tracesetc.com/Library/Handouts/Lyme.pdf
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Re: DO I HAVE MS? NEED HELP URGENTLY

Postby jimmylegs » Wed Nov 06, 2013 3:26 pm

this is what I actually recommend, in full:
key nutrients for ms regimens-f22/topic2489.html
READ ME key info on nutrient targets - www.thisisms.com/ftopict-2489.html
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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