Scalp Hot spots?!?

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Scalp Hot spots?!?

Postby mpalla » Wed Nov 06, 2013 7:52 pm

Been on avonex 4weeks now. I have noticed hot spots if I shoot at say 4....at midnite temperature hot burning spots inside my head. I have to put an ice pack on to cool it to go to sleep. Now...it is a raised muscle?! Or gland that feels good when massaged....what does anyone think? What should I do? Be worried or not?! The avonex people haven't even called to check anything (like the Copaxone people did) don't feel they should be awarded a call. Ever heard of this or what?! Help please. :(
Diagnosed 2-13-13. RRMS.
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Re: Scalp Hot spots?!?

Postby NHE » Thu Nov 07, 2013 12:13 am

mpalla wrote:Been on avonex 4weeks now. I have noticed hot spots if I shoot at say 4....at midnite temperature hot burning spots inside my head. I have to put an ice pack on to cool it to go to sleep. Now...it is a raised muscle?! Or gland that feels good when massaged....what does anyone think? What should I do? Be worried or not?! The avonex people haven't even called to check anything (like the Copaxone people did) don't feel they should be awarded a call. Ever heard of this or what?! Help please. :(


I did better taking my shot around noon. The side effects were easier to manage while I was awake. I could take ibuprofen at the time of my shot and then have a second dose about 4-6 hours later. In addition, I also slept better as my body did not thermoregulate well when I tried to "sleep through the side effects."

I don't know what to say about Biogen calling you. If you have a problem, then perhaps you should call your doctor's office and speak to a nurse. When I was on Avonex, I had "Marion the Avonex nurse" call me about once a month for the first 6 months to a year.

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Re: Scalp Hot spots?!?

Postby mpalla » Fri Nov 08, 2013 2:20 am

NHE I am only able to get to 1/2 shot. I did 1/2 and had a week long migraine...had to get torradol shot to cut it. They put me on a headache "blocker" topamax. I was on 25mg1x then I was driving and dreaming off...cut the topamax in half. I hate being treated with a medicine that damn near kills you to take a pill that has side effects too....I am mad. I hate ms. Just flipping mad....with a hot spot headache. May call my Dr today. He is waaay better then the neuro jerk I have. :/
Thanks for listening I just somedays want this all to end.
Diagnosed 2-13-13. RRMS.
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mpalla
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Joined: Sun Mar 24, 2013 7:51 pm
Location: Michigan


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