Need advice on my NUCCA experience, please.

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Need advice on my NUCCA experience, please.

Postby chowder1 » Wed Feb 05, 2014 12:10 pm

I need advice on my NUCCA experience, please. I need to know if what I am experiencing is normal.

I have had 10 adjustments, thus far. About 3 adjustments were GREAT!! My mood was better, I had more energy, and best of all, the spasticity in my left leg went away and I could move easily!! As expected, it only lasted a day, but it was great while it did!!! I even got to take my 12 year old daughter to the mall!! Yippee!!

But the last 4 adjustments have done very little. I walk in with a limp and walk out with a limp. The spasticity eases a little while I am there, but is back full force very soon, thereafter.

The doc says things are getting better..... I have less torque in my leg, the spots he touches on the back of my neck are less sensitive. My neck has been feeling stiff for a few days and he said that was good, I'm coming into alignment.

He will do more measurements at appointment tomorrow to check things.

I had full faith in this and am getting discouraged. Yeah, it's great that the spots aren't as sensitive, but to me, success is walking better with spasticity gone!!

And the cost.........

Advice????
age: 44, rrms 14 years, breast cancer 2011
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Re: Need advice on my NUCCA experience, please.

Postby jimmylegs » Wed Feb 05, 2014 12:13 pm

heya :) glad to hear you had some benefit :)
remind me what's the latest on your magnesium status?
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Re: Need advice on my NUCCA experience, please.

Postby chowder1 » Wed Feb 05, 2014 12:22 pm

Hi Jimmylegs

I was just about to contact you
Would it be Ok to pm you about the nutrients?

Thing have been kinda chaotic since Christmas.
age: 44, rrms 14 years, breast cancer 2011
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Re: Need advice on my NUCCA experience, please.

Postby jimmylegs » Wed Feb 05, 2014 12:23 pm

yep for sure - pm away!
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Re: Need advice on my NUCCA experience, please.

Postby DougL » Thu Feb 06, 2014 5:57 am

your experience sounds like my wife. be patient, i still think it is helping.

the doc is always trying new things based on what my wife says about the last adjustment. for the few times when those adjustments did nothing or only lasted a short time, he would do something different for the next adjustment.

tuesday this week, my wife again handed me her cane as we exited the doc's office. she hadn't done that in a few months.

it is typical that the doc has to do 3 adjustments on her per visit. after the second or third, you can visibly see the improvement in her balance

i tell her to be patient - MS has had 20 plus years of making her "off". doc has only be getting her back "on" for less than a year.

good luck
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Re: Need advice on my NUCCA experience, please.

Postby chowder1 » Thu Feb 06, 2014 6:21 am

Thanks, Doug. I was hoping you would chime in.

It is just hard to experience the 'greatness' after an adjustment, and then not again. I keep hoping after each adjustment it happens, but it's not. But the 'greatness' has me hooked cause it was amazing.

I can also tell my shoulders are more even. Again, this is nice, but I started going to be able to WALK better. I hope this will eventually lead to walking better. I go twice a week now and am hoping to go less often. (My own goal is eventually once a month.) It's a 45 minute interstate drive one way and $90 a week. Kinda a hardship on time and money.

Thank you for your input. Hubby says he'll support me on my choice but doesn't really believe in this therapy. But, I'm done with the CRAB drugs.

diane

I'll see what today does. Did your wife have all those spine measurements with the graphs??
age: 44, rrms 14 years, breast cancer 2011
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Re: Need advice on my NUCCA experience, please.

Postby DougL » Thu Feb 06, 2014 7:31 am

chowder1 wrote:I can also tell my shoulders are more even. Again, this is nice, but I started going to be able to WALK better. I hope this will eventually lead to walking better. I go twice a week now and am hoping to go less often. (My own goal is eventually once a month.) It's a 45 minute interstate drive one way and $90 a week. Kinda a hardship on time and money.

she also started off twice a week, then once a week and now once every 2 weeks.

this last visit the doc suggested keeping an accurate diary of how she feels each day and report back to him. it will help him "adjust" her adjustments.

if you believe what they tell us (and I do), your Atlas is the foundation of your body. a straight foundation will have a straight body.

my wife always says that she feels off - her right hip is much higher than the left (20+ years of MS will do that). last visit doc said she is pefectly level now - YAAY.

I will say the same thing i said about CCSVI. there are millions of people who can live a normal life with blocked veins (CCSVI) or an off center ATLAS. pwMS cannot.

in my opinion, anything you can do to get your veins unblocked or your Atlas straightened is a good thing. might never cure your MS but if it makes even the slightest improvement in QAL then any price is worth it.


PS - yes she has all those x-rays and graphs
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Re: Need advice on my NUCCA experience, please.

Postby chowder1 » Thu Feb 06, 2014 12:52 pm

Back from NUCCA

He decided to re do measurements after a couple more adjustments, not today.

He is confident I am on the right path because the spasticity in my leg moves from thigh area to calf area throughout the day. He said eventually it will go away. Fingers crossed it will go away sooner rather than later!!

Right now, quality of life is about the same as before, but I'll keep at it!
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Re: Need advice on my NUCCA experience, please.

Postby chowder1 » Thu Feb 13, 2014 6:06 am

Hi......me again......

Going back for another NUCCA adjustment today and more measurements.

Not in the best mood this morning......my lower back aches, and that definitely affects my mood!

Hoping the adjustment "does" something today. My lower back ached a few adjustments ago, nothing too major, and Dr. said this was a good sign that I was coming into alignment. Then no more pain. YAY....I thought. Then neck felt somewhat 'stiff', no pain, though. Again, Dr. said it was a good sign I was coming into alignment. Spasticity in left leg was moving from thigh to calf throughout the day, another good sign, he said. Now, after adjustment Tuesday, my lower back is hurting worse......and I still can't walk well!! Sorry......puts me in a sour mood.

DOUG........I'm confused a little about "3 adjustments". Do you mean 3 separate times with checking the feet in between??? And "trying new things"??? At each visit, he asks me what changed with the last adjustment. But doesn't comment on doing anything different. Maybe he is and just doesn't say it??? My leg has been 'not working right' for about 3 years. I've had MS for about 15, but somewhat lucky, I guess.

Enough whining for now.....
Wish me luck!
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Re: Need advice on my NUCCA experience, please.

Postby chowder1 » Fri Feb 14, 2014 10:41 am

No new measurements....... a new xray instead.

NOW.....not when I started in December...... I am a complicated case...... "If I checked 50 people and they all fell into either category 1, 2, or 3, you would fall into a 4th."

Then an adjustment. A louder 'pop' and he said, "You are going to feel so much better!" Again, 'Yay,' I thought. Just in time for Valentines day. Within 10 minutes of the drive home, my back starts aching again! Am I getting a pseudo affect??? I want so much for this to help! After I got home, I laid down the rest of the night. Back ache would come & go.....not from anything I was doing because I was just lying in bed. The spasticity in my leg was gradually coming back, too! CRAP!! I told myself things would be better in the morning! ......NOPE!!!!

Today..... I feel like I did when I went there initially in December. My shoulders are no longer even and I am slouching more. The only difference is the leg spasticity is higher on my thigh than before. (Initially it was more above the knee area)

I am torn. Should I call it quits and cut my losses?? It's hard because I remember feeling SO good after 3 (out of 12) adjustments. Living with MS, you know how great it would be to feel 'normal' again. UGH
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Re: Need advice on my NUCCA experience, please.

Postby eric593 » Sun Feb 16, 2014 11:53 am

When I try something new, I tend to give it a time deadline before I make any judgments about it, say 6 months or a year. That way, I'm not having unrealistic expectations and critical review after each treatment, I don't think that's giving a new regime a fair shake.

Sometimes, I will keep a running daily log of "rating" my symptoms on a scale so that I'm able to do a global review now and then and see if there are any trends over time that I may not notice day-to-day.

I think it's easier to see changes over time rather than expecting dramatic changes after any single adjustment, you may have unrealistic expectations and quit it too soon if you're looking at a single treatment to be a panacea. Time and patience before evaluating its success or failure may be beneficial and reduce your stress level over this which can be a detriment in and of itself.
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Re: Need advice on my NUCCA experience, please.

Postby civickiller » Mon Feb 17, 2014 4:26 pm

I tried nucca for a year a couple years ago which nucca only worked for less than a year then Someone on here, EJC?, showed me an article on here by a Dr. Amir about jaw misalignment. Since Dr. Amir is in the UK and his jaw correction is a secret, I looked for the closes dentist to Dr. Amir I could find in Hawaii which ended up being a neuromuscular dentist w/ a myotronic K7 unit. He found my jaw/bite to be very off and I was going to develop TMJ in the future unless I got braces to fix my jaw which I will take me 2 years.

I have done a little over a year already. Dr. Amir has said that most of his patients own C1 corrected itself when the jaw was corrected. I just hope it relieves my lower back pain. I am in a wheelchair now, am doing physical therapy with the hopes of walking again in about a year
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Re: Need advice on my NUCCA experience, please.

Postby civickiller » Mon Feb 17, 2014 5:41 pm

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Re: Need advice on my NUCCA experience, please.

Postby DougL » Tue Feb 18, 2014 1:54 am

chowder1 wrote:DOUG........I'm confused a little about "3 adjustments". Do you mean 3 separate times with checking the feet in between???


each visit starts with a few questions about how she is feeling. she then stands up against a bench while he exams her visually. sometimes she is asked to turn her neck side to side and comment.

several visits have started with being on a regular massage table. he works on her lower back and hips. this is mostly because of tightness or pain.

however, normally, after the visual she is on a lower table. he does his thing (adjustment 1) and gets her upright. she walks from the table to the door and they discuss her feelings.

back to standing upright, legs against table, visual, and back to lower bench. he does his thing (adjustment 2). repeat walk.

usually, by the third adjustment, she is "better".

it is hard to say what "better" is. i think the best word is balanced or centered. you can clearly see the difference in her walk.

the problem is how long the improvements last. sometimes they are gone by the next morning but sometimes they last longer. we have no plans to stop anything yet.
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Re: Need advice on my NUCCA experience, please.

Postby chowder1 » Mon Feb 24, 2014 2:49 pm

Diane, again.....

I have continued to go have adjustments on Tuesdays and Thursdays. Dr. says my leg length is 1/8th of an inch off.....almost perfect. But I FEEL no different. Shoulders became even after a few adjustments in December, now they are uneven again and posture is slouchy again, too. This is what I don't understand. It seems like I am regressing back instead of improving, but I am trusting the doc. He said I still need to come twice a week.

Doug.....My adjustments aren't like your wife's. The doc asks me what's different, checks my leg length while I lay on the low table. He then feels for sore spots behind my neck. Then adjustment, and checks the spots again to make sure they are no longer sore. Then I'm on my way....... Other than the spots no being tender, I really don't feel much different.

Civickiller......I have also "talked" to EJC about Dr. Amir. He is very helpful. Unfortunately, I am in Ohio, USA. I don't think my bite is a big problem, either. But, I keep that info on the back burner, just in case.

Thanks for all your help!
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