And that is an extremely important point. By midday yesterday I had a full charge of energy back and could draw on it again without being flattened. I think the Valtrex was a case of too much chilli in the curry. Finally I could empathise with the people who struggle to take it. I guess it's all about balance. Today is day 7 for me and I feel fine. I really thought I was doing something stupid on day 3. Hopefully I never feel like that again. I will take the weeks break and repeat but I will leave the Valtrex in the drawer.
What sort of MS do I have? I was RR and was diagnosed 20 years ago with a right sided pontial lesion that badly affected my left side plus a string of other lesions. The pontial lesion has resolved and my MRI's only show 7 scars now. My older scans look a lot worse than recent ones but the Neuros are disinterested in what I have been doing (no surprise there).
I would say I am completely in remission and I doubt I will ever relapse. I was sliding downhill till I combined Valtrex with Avonex. (I may have been amongst the first Avonex users in Melbourne so it is quite a while ago), Neither one, on its own, was much use. It was the combination.
That helped me turn the corner but it wasn't the answer, just an intermediate step.
After a lot of stuffing around I have concluded that two things go wrong 1) the kidney/renal axis has failed us from birth and 2) we get exposed to a persistent virus (implies herpes family) that ultimately leads to the excessive production of peroxynitrite and a series of knock on effects.
I can't explain how demylination fits into my view but none of the explanations are really satisfactory. The observations of Moscarello ( http://www.ncbi.nlm.nih.gov/pmc/articles/PMC296292/
) are the only sensible things I have seen on MS myelin.
I've mainly stuck to two posts; "Avonex and Valtrex" and "Beyond Avonex and Valtrex". I think the latter is more useful but it might be hard to follow. If I can help anybody, I am happy to try but remember what I did took a long time. There is no magic bullet.