Leticia wrote:Yes centeraian100 he is. She is trying to have our small town OBGYN get her the referral to UNM. We live in a town with a oil boom happening and it has dr office overcrowded and dr overloaded. They also just said she has fibromyalgia and lupus. She keeps getting the butterfly rash on her face but insurance denied to pay for the lupus panel. Its just a big mess. She hasn't ever fully recover from her last flare up either. Prednisone only seems to help for a little while and I know its not good on her body. Any suggestions are helpful. I know im reading alot on anti-inflammatory diets and vitamins.
One think to note is that certain lupus drugs in the class of anti TNF alpha monoclonal antibodies (i.e. humira) have been associated with multiple sclerosis:
It may be wise to avoid these drugs.
generally speaking, platform treatments of MS such as copaxone, avonex, rebif, extavia, betaseron are not effective in other autoimmune disease such as lupus. Tysabri has even been reported to worsen other autoimmune diseases (presumably by increasing the serum white blood cell count).
Some lupus treatments may be effective for multiple sclerosis on the other hand (i.e. rituxan, cellcept, azathioprine).
Presuming that your mother isn't going to forgo standard medical therapy (which would probably be recommended by most of the posters on this board), there may have to be some collaboration between a rheumatologist and neurologist
by the way, how can your insurance company refuse to let you do an ANA, anti-DS DNA et cetera. Are they really that expensive?
and yeah...it's definitely a good idea to avoid too much prednisone