I'm sorry I didn't respond earlier, I was away from my computer.
DrGeoff, if you are reading this - you say that you wish you had started Copaxone earlier, and that it has reduced the number and severity of your relapses. Would you have started it even if you felt good and didn't have relapses even without it?
Zjac - So you've decided to wait. This philosophy is still valid in my country (Croatia). In order to get a DMD you have to have two relapses within two years of the diagnosis. I have an official dg. based on the tests, but no relapses for over a year. There are,however, ways around that rule, which is why I'm doing all this... research, if that's what we can call it.
Your post is far from ranting, you make so many important points that I think I'll be coming back to it every now and then.
I've come across this wheat (gluten) intolerance many times now, and I must do this test as well, although it is probably good to avoid those foods even if the test comes back normal.
My daily routines weren't much different from yours - no exercise, mostly fried food (not fast food per se, but still far from healthy), only I like vegetables.
As for sleep, I don't have insomnia, but my sleep has always been in the lower part of the "normal" range -6-7 hours typically. I've also had a bout of real insomnia at college which lasted for several months, and for which I wouldn't be surprised if that was what led to or at least advanced my MS. Of course, whether it was poor sleep that brought about MS, or vice versa, or those two didn't have much to do with one another, I will probably never know. Like MS, sleep is poorly researched and poorly understood.
As for vitamin D - mine is in normal range, but I've heard many times that MS-ers should boost it to high levels. I will discuss this with a neuro in June (third neuro, by the way, who knows what he/she will say)
CCSVI is usually considered a wild goose chase, but even here an occasional neurologist says that there may be something to it. I have been experiencing something akin to mini-seizures every two-three months for about three years now, and as soon as I was diagnosed with MS I naturally connected those seizures with MS. However, they told me at the hospital that those seizures are not connected with MS, but that I have some sort of "vasovagal syncope", probably connected to a cyst on my pineal gland, and all those things are benign and not connected with MS. I tend to trust doctors, but perhaps a check up on my veins one day would also not be a bad idea. I'll discuss this with that third neuro as well.
After talking to all of you ,I will "attack" that poor neurologist with so many questions he/she will never want to treat me again.
I understand and agree with your opinion, Zjac, that sometimes we have to be our own doctors. But any test I get from a neuro gets covered by my insurance, and every other must come out of my own pocket, so I'll rather wait for that appointment. And there are so many tests that I am planning to do.
Thank you once again for all the information, it would take months of Googleing if not for this forum and the people on it.