hoping to get function back

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hoping to get function back

Postby ribeye » Sat May 17, 2014 8:16 pm

I hope to get my function back but I was told numbness lasting more than 2 years will not resolve. It has been 5 years since my left hand took the hit. Is there any way this wretched numbness can be helped? Thanks to you all.
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Postby jimmylegs » Sun May 18, 2014 5:08 am

curious what you have been doing to manage your ms so far?
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Re: hoping to get function back

Postby want2bike » Sun May 18, 2014 6:07 am

Some people get function of the body back. It is all about the path you take to healing. Dr. Wahl and Roger MacDougall got their health back by using a proper diet. You have to do it. There is no pill that will do it. It is about the lifestyle you choose. Dr. Bergman explains what it takes to get your health back.

http://www.direct-ms.org/rogermcdougall.html

http://articles.mercola.com/sites/artic ... -diet.aspx

http://www.youtube.com/watch?v=zGmyUppmt-g
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Re: hoping to get function back

Postby ribeye » Sun May 18, 2014 7:53 am

Well, I did not do a thing from my first (undiagnosed) attack in 2001 to the next attack in late 2008. Diagnosed in Feb 2009. I took coq10 and vit d3. Have tried r-ala, nac (migraine auras made me cut back to 250 from 600). Vitamin b complexes just make me feel odd and edgy. Doing inosine and now mag glycinate and 50 zinc and 2 copper per info on this site. I guess I have been doing OK compared to many others with ms but MRI,blood work,tests cost so much to know if the noggin is still alright.

I did do copaxone for two years but took a break. Tried tecfidera but just awful for me. Will go back on copaxone soon. Hey, I am up for anything. I tried chiropractic, but hand did not improve, although my back felt great.

Would a tens device cancel out the numbness or has this been tried?
Last edited by ribeye on Sun May 18, 2014 8:04 am, edited 1 time in total.
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Re: hoping to get function back

Postby Kronk » Sun May 18, 2014 7:59 am

Some people have said LDN can reverse damage. I did not find that it helped much. I noticed a shift in my right eye, less contrast better acuity. Its cheap, not many side effects and a little pill taken once daily so worth the shot in my opinion.
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Re: hoping to get function back

Postby ribeye » Sun May 18, 2014 8:28 am

LDN is something I am considering, but I do enjoy going out for beer about once a month. Would this be a really a bad idea with ldn? Hate to lose one more thing I enjoy.

I should mention that I do smoke and have actually gained about 40 pounds since my diagnosis.

Thanks for helping. I appreciate it very much.
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Re: hoping to get function back

Postby Kronk » Sun May 18, 2014 8:47 am

I drink occasionally and does not affect the LDN. Narcotics will, Naltrexone was originally developed to help heroin addicts kick the habit by blocking endorphin receptors.

Not to state the obvious but smoking, lack of exercise and a poor diet will increase the amount of free radicals in your body which will increase inflammation. Would be best to change some of the habits, but its your call. Lifestyle changes can be made without taking away the things you enjoy.
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Re: hoping to get function back

Postby jimmylegs » Sun May 18, 2014 2:03 pm

when i got the most recovery of position sense from my modified klenner protocol, it was lots of b-complex and lots of vit e. at first i chalked it up to the b complex but later i found this http://neuromuscular.wustl.edu/nother/vitamin.htm#e (vit E and sensory ataxia) and realized i had probably not given vit E enough of the credit. i hadn't been eating near enough greens or nuts and seeds http://whfoods.org/genpage.php?tname=nu ... #foodchart
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Re: hoping to get function back

Postby ribeye » Sun May 18, 2014 5:49 pm

I have a vitamin E complex that has all of the various essential parts of E. I never took it, and just found it in the cupboard today. Will give it a go for sure.

In 2002, my left leg was pretty much normal except for tingling. My neuro at the time did conductivity tests but found no reason to diagnosis ms due to no lesions on MRI. He did however tell me to take vitamin E and prescribed a high blood pressure med.(it was just an old cheap type, can't remember). I did not and still dont have hbp. It seemed to help so I quit after a year. Then, as they say, the fit hit the shan in 2008. Actually, I was relieved to get a diagnosis. Wish I came across this site then.

Any chance my hand could work as it should? That would be sweeeeeeet.

One thing, why do b100 tabs make me irritable and odd feeling?

Thanks jimmylegs for your link. Any more ideas for sensory problems?

Thanking all of you, Ribeye.
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Re: hoping to get function back

Postby jimmylegs » Sun May 18, 2014 6:10 pm

perfect re the vit E.

i used to be able to reverse my symptoms 100% but at some point i crossed a line. i think it was basically adding physical trauma to horrible nutrient status that took me past the point of no return. i got my position sense back so that i could play guitar and type again, but i still have some numbness. it's the new normal, so be it. crappy life lesson learned.

not sure re the b100. never heard of it affecting anyone like that.

nothing else specific comes to mind right now, other than the usual stuff you already know about. if i think of anything else, will relay :)
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Re: hoping to get function back

Postby PointsNorth » Tue May 20, 2014 8:07 pm

I always used to find a B12 shot relieved numbness in hands quite nicely. By injecting.
Albany 2010. Brooklyn 2011
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Coimbra Protocol 2014-15
DrG B12 Transdermal Spray 2014-15
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My Current Regimen http://www.thisisms.com/forum/regimens-f22/topic25634.html
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Re: hoping to get function back

Postby ribeye » Wed May 21, 2014 6:51 am

Started the full spectrum vitamin E this week. Surprising energy but hand has no change. Too early I would think.

How long do b12 injection benefits last? Shots are no problem since I have done copaxone.

Also, is the cost very high?

Thanks for all.

Ribeye
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Re: hoping to get function back

Postby lyndacarol » Wed May 21, 2014 9:06 am

ribeye wrote:How long do b12 injection benefits last? Shots are no problem since I have done copaxone.

Also, is the cost very high?

From Could It Be B12? by Sally M. Pacholok, RN, BSN, and Jeffrey J. Stewart, D.O.:

Copaxone, an MS drug, costs $36,000 per year, while B12 therapy costs under $40 per year. (Page 69)

As I understand it, B12 injections are necessary on a regular basis – dependent on the individual's needs. This may be once a week or bimonthly. Like Copaxone or any MS injectable, it will probably be required for life and may be covered by insurance.
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Re: hoping to get function back

Postby zjac020 » Wed May 28, 2014 7:48 am

i understand b12 injections are necessary if one has b12 issues... Right?
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Re: hoping to get function back

Postby syckbastid » Wed May 28, 2014 9:36 am

My second acute attack left me with disability in my hands. These exercisers have helped me tremendously... FYI - I am not affiliated with this company; I don't get any $$$ out of this. Best of luck.

http://prohands.net/
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