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If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

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Postby Lyon » Thu Jun 01, 2006 7:15 pm

oo
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yuk factor got me

Postby jimmylegs » Fri Jun 02, 2006 5:57 am

okay i had to look up what the heck helminth was. how interesting! i don't think i saw bromley's earlier post. was the focus on how the body's immune system is not appropriately educated in developed areas with "better" hygiene?
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Re: yuk factor got me

Postby Lyon » Fri Jun 02, 2006 1:22 pm

oo
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parasite meds

Postby jimmylegs » Fri Jun 02, 2006 1:38 pm

ha. wonder what hulda clark would say to that! lol
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Postby Lyon » Fri Jun 02, 2006 1:51 pm

oo
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Re: parasite meds

Postby Lyon » Fri Jun 02, 2006 2:20 pm

oo
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parasitastic

Postby jimmylegs » Fri Jun 02, 2006 2:42 pm

yea if that works it's going to be a real fly up hulda's nose. mwa hahahaha!
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Postby Lyon » Fri Jun 02, 2006 4:08 pm

00
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parasites

Postby jimmylegs » Fri Jun 02, 2006 5:15 pm

there's no need to know more about hulda clark, she is just someone who thinks every disease is caused by contaminants and/or parasites.

i don't like the way the drugs are targeted. i don't take any yet. (deep down i don't think i'll really believe i have ms until i have a relapse. so i don't want to medicate until that last "dissemination in time" check mark is added to the list.)
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To add two-cents' worth

Postby lyndacarol » Fri Jun 02, 2006 5:41 pm

I have my very own copy of the book,The Cure for All Diseases by Hulda Clark. I have a friend withh MS who thinks Hulda is on the right track. My opinion is don't bother to buy her book!

I am still the website's resident believer in excess insulin as a key player in MS. Specifically, I think the route is 1. inflammation from various causes (chronic sinus drainage in my own case), 2. response of excess insulin production by the pancreas, 3. damage to blood vessels by insulin, which is an irritant (causing tingling--paresthesia), 4. then the immune system steps in for repair which becomes over-zealous.

Right now I am trying to reduce inflammation and sinus drainage. Also, I have greatly restricted my diet in an attempt to reduce insulin production (but 3 months have not brought ANY changes yet--except my glucose level is back to normal). From jimmylegs' information, I think Vitamin D must reduce the insulin traveling in a body so I am making a greater effort to get sunshine (Those on a tetracycline should NOT do this.) and even supplementing more with pills. I am not up to Legs' level of consumption yet and am still arranging to have my serum level monitored. I know my insulin is high; now I expect my D level will be low. I now encourage everyone to have insulin levels and Vitamin D levels tested.

In my unscientific brain, this scenario would seem to accommodate every idea and fact I know about MS--simplistic, but so am I!
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back to point D

Postby jimmylegs » Fri Jun 02, 2006 7:00 pm

hi LC! yea hulda cuts a pretty big figure with some people i know too.

on an aside rather irrelevant to this string - well you started it so i'll just continue ;) - i just finished day 3 of my 50,000IU D3 per day for 10 days deal. i have yet to ask my doc for an insulin test.

one thing i have noticed, since starting high doses of D (among high doses of other things, and by hi doses of d, i mean the last few months of 3400-6400IU D3 per day prior to starting this short term mega-mega dose) is that my fingernail pitting, and separation from the nail base, has cleared up. OH. YEAH!

my doc said she has seen my fingernail issues in psoriasis, which has been my companion mainly since puberty (with the exception of a summer when i was 14 or 15 and spent almost every day at the local outdoor pool... in the sun...)

anyway, i take this to mean that the D3 is doing other things which are not so visible. which may include lowering insulin! but i think its impacts are much more convoluted than that. also, LC, did u see we have a new member, recently diagnosed, who has had diabetes for years? linky linky!

ta ta :)
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Postby flipflopper » Fri Jun 02, 2006 7:52 pm

Bob,

I saw the ending of a show a few months ago. They were following a young girl with very aggressive Crohn’s disease. No medications had been able to control her disease. She was enrolled in a clinical trial and she was given eggs from the parasitic worm helminth to drink. This was very effective for her!


I found that very interesting. I didn't know that this was already being looked into for people with ms. I do hope that this idea will be tested in people with multiple sclerosis.


And, as far as the “yuck” factor is concerned, If it helps with my ms, I will gladly drink a glass with eggs from (harmless) parasitic worms. I have no problems doing that!! :)
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Postby Lyon » Fri Jun 02, 2006 8:39 pm

oo
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We must exercise some caution.

Postby lyndacarol » Sat Jun 03, 2006 5:34 am

I understand that our answer may come from some unusual source, but we must exercise some caution, no matter how desperate we are (And, believe me, I am with the desperate!).

A friend with MS (now severely disabled and in a nursing home) took cobra venom more than 30 years ago. With NO benefit!

I agree with Bob's assessment of the drug companies' influence on the course of research and development of treatments. It is easy to despair over the situation. This site offers us hope that WE can be more involved.
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Re: We must exercise some caution.

Postby Lyon » Sat Jun 03, 2006 8:40 am

oo
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