cam wrote:I have MS, but haven't yet told my family, just needing time and figuring out how to best do it. However just recently my 9 year old niece has had a number of seizures - "out of the blue". Is aware of them coming on and during - seems mainly to affect her right side - leg/arm. Recent blood and CT scans haven't turned anything up, awaiting EEG results and seeing a children's neurologist. Could there be a connection? From what I could find, seizures are not common in MS, but if her neuro would benefit in knowing there is a family member with MS - I will definitely tell them. I just was wondering if anyone has any more info or just some good advice. I appreciate any tid-bits you could send my way.
I have a couple thoughts and questions for you, cam.
I wonder if your doctor's first step was to rule out a vitamin B12 deficiency when you were diagnosed in 2002 with MS; if not, I encourage you to discuss with him the possibility of doing testing now. Request testing orders for your niece as well. Consider asking your 9-year-old niece to accompany you and have the testing done also (or perhaps this was already done in her bloodwork – seizures can be a symptom of B12 deficiency). With 1 blood draw, 3 tests can be done: #1 serum B12 test; #2 serum folic acid test; #3 serum homocysteine test. A urinary
methylmalonic acid (uMMA) test is also done to confirm a diagnosis of B12 deficiency in the blood.
I highly recommend this 50-minute documentary featuring Sally M. Pacholok, RN, BSN & her husband Jeffrey J. Stuart, D.O. (authors of the book, Could It Be B12? An Epidemic of Misdiagnoses
); Lawrence Solomon, M.D., hematologist with Yale Medical School; Ralph Green, M.D., hematologist at UC Davis; and Donald Jacobsen, PhD, at the Cleveland Clinic (Homocysteine Research Lab):
"Everything You Want Your Doctor to Know about Vitamin B12"http://www.youtube.com/watch?v=BvEizypoyO0
In the book, Could It Be B12?,
page 300, "Appendix G: Signs and Symptoms of B12 Deficiency in Infants and Children" one of the entries is "seizures."
In the following 5-minute video, a pediatrician speaks about finding a B12 deficiency in a 9-month old baby; one of the symptoms he mentions is "seizures." http://www.youtube.com/watch?v=8JVJKBwDCd8