Hm that's interesting.. Sorry to hear that. But glad you found something that brings some relief. I have been getting this pain in my right eye off and on since January and it only hurts when looking down.. Just seems so random sometimes.. Dr has tried steroids and that has seemed to help when at higher doses but kept coming back when I was off the meds.. Going to neuro-ophthalmologist at the end of april..
I appreciate you replying and sharing with me.
pain
Re: pain
I have the same pain, a burning sensation.
#1: Take Amitryptalene (Elavil) - Cheap Drug, but the BEST. It hits ALL the neurotransmitters.
#2: Take Lyrica, if possible. It is for diabetic nerve pain, but works just as well for MS. As we have damaged nerve pathways.l
Other options:
- Tegretol
- Gabapentin
- Baclofen may help
Don't waste your time with changes in food and all that stuff. Use stuff that WORKS for sure.
Trust me!
#1: Take Amitryptalene (Elavil) - Cheap Drug, but the BEST. It hits ALL the neurotransmitters.
#2: Take Lyrica, if possible. It is for diabetic nerve pain, but works just as well for MS. As we have damaged nerve pathways.l
Other options:
- Tegretol
- Gabapentin
- Baclofen may help
Don't waste your time with changes in food and all that stuff. Use stuff that WORKS for sure.
Trust me!
Re: pain
it is true that nutrition has to be done correctly for it to work, and that it takes a fair bit more effort than drugs.
the risk associated with choosing drugs first, is the masking of symptoms related to the nutrient deficits common to the average ms patient.
i personally would always choose to rule out nutritional influences on symptoms first, and only then worry about treating whatever is left-over.
the risk associated with choosing drugs first, is the masking of symptoms related to the nutrient deficits common to the average ms patient.
i personally would always choose to rule out nutritional influences on symptoms first, and only then worry about treating whatever is left-over.
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Re: pain
I agree with Jimmylegs.
Ask yourself if your pain is constant or variable. If it is constant, unfaltering and relentless then drugs would seem a logical way to mask that discomfort. If it sometimes bad and sometimes not then that is a sign that it is not fixed. If you hide temporary pain behind a broadbrush panacea then how will you know how you really feel (which might be rotten)?
When I was in hospital I was endlessly asked if I wanted something for pain. When I was discharged they repeatedly wanted me to "confess" I was depressed. All the medical advisors offered was something that masked my actual state.
Through good diet, rest, lots of exercise, massage and time I am now recovering. If I took their suggestions I doubt I would be as well as I am now. As I continue to improve my neurologist, cardiologist, physiotherapists and GP have started to change their rhetoric because the crisis is passing. They are just as impatient as we are so they go for the quick fix.
Jimmylegs says rule out nutritional influences. I would add infections and metabolic imbalances to the list of things to cover as well.
Deal with the pain if you have to. There is no point being in agony. The painkillers are masks and sometimes they come with their own problems.
Knowledge is the answer not hiding from the symptoms.
Regards
Ask yourself if your pain is constant or variable. If it is constant, unfaltering and relentless then drugs would seem a logical way to mask that discomfort. If it sometimes bad and sometimes not then that is a sign that it is not fixed. If you hide temporary pain behind a broadbrush panacea then how will you know how you really feel (which might be rotten)?
When I was in hospital I was endlessly asked if I wanted something for pain. When I was discharged they repeatedly wanted me to "confess" I was depressed. All the medical advisors offered was something that masked my actual state.
Through good diet, rest, lots of exercise, massage and time I am now recovering. If I took their suggestions I doubt I would be as well as I am now. As I continue to improve my neurologist, cardiologist, physiotherapists and GP have started to change their rhetoric because the crisis is passing. They are just as impatient as we are so they go for the quick fix.
Jimmylegs says rule out nutritional influences. I would add infections and metabolic imbalances to the list of things to cover as well.
Deal with the pain if you have to. There is no point being in agony. The painkillers are masks and sometimes they come with their own problems.
Knowledge is the answer not hiding from the symptoms.
Regards
Re: pain
I totally understand what you are saying. I really don't like taking meds. I asked my dr for some tramadol about 2 months ago. He gave me a script for 60 and since I have taken maybe only 4.. Same goes with my flexeril.. I only have taken one in the past few weeks..I feel like while I still dont know what is going on with me I want to be aware of when it hurts and how bad it hurts, hoping that the knowledge will help me inform drs more and lead to a diagnosis sooner than later.
I did see infectious disease and they ruled out a few different viruses and lyme.
I did see infectious disease and they ruled out a few different viruses and lyme.
Re: pain
Hi Dana,
I wasn't trying to preach either. Probably sounded like it!
Pain is so subjective and I think you are going about it the right way. I found that some pain, for me, was strongly correlated to elevated blood pressure and other pain was influenced by muscle spasms elsewhere. It is quite tricky to untangle.
If you are going to look at pain as indicator of problems then you will need help to keep the observations objective. I found the technical knowledge of a physio invaluable but the improvement came through a good pilates instructor translated that into solutions.
There are general observations about pain but I find keeping moving helps. Staying sedentary makes pain return for me. The issue then is do you have the energy to remain moving without exhausting yourself? The two issues go hand in hand.
Regards,
I wasn't trying to preach either. Probably sounded like it!
Pain is so subjective and I think you are going about it the right way. I found that some pain, for me, was strongly correlated to elevated blood pressure and other pain was influenced by muscle spasms elsewhere. It is quite tricky to untangle.
If you are going to look at pain as indicator of problems then you will need help to keep the observations objective. I found the technical knowledge of a physio invaluable but the improvement came through a good pilates instructor translated that into solutions.
There are general observations about pain but I find keeping moving helps. Staying sedentary makes pain return for me. The issue then is do you have the energy to remain moving without exhausting yourself? The two issues go hand in hand.
Regards,
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