New MS Society "Wellness Program"

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New MS Society "Wellness Program"

Postby cheerleader » Thu Apr 09, 2015 7:33 am

Looks like Dr. Roy Swank was on to something sixty years ago.
National MS Society is finally considering impact of cardiovascular environmental factors on MS progression---and recommending nutrition, exercise, stress reduction, smoking cessation.

http://ccsviinms.blogspot.com/2015/04/a ... -from.html


cheer
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dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Re: New MS Society "Wellness Program"

Postby ElliotB » Thu Apr 09, 2015 5:19 pm

That letter is not from the MS society. Rather it is from a blog from someone named Joan. She adds, after the letter:

"(note: just so I won't get sued, this letter isn't real. It's satire."

For anyone interested in what the National MS society has to say about diet, exercise, etc.:

http://www.nationalmssociety.org/Nation ... plewMS.pdf
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Re: New MS Society "Wellness Program"

Postby cheerleader » Thu Apr 09, 2015 11:05 pm

sorry, Elliot. that's me--Joan.
My post here was a link to my blog--on the irony of the fact the MS Society is now developing and promoting a wellness program.
(I give a link from 2008 where the National MS Society spokesperson says the benefit from diet and exercise is "placebo", thus my satirical post.)
Sorry the post wasn't clear. By all means, check out the MS Society suggestions.
All cardiovascular measures which are being shown to help pwMS.
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dx dual jugular vein stenosis (CCSVI) 4/09
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Re: New MS Society "Wellness Program"

Postby Leonard » Fri Apr 10, 2015 1:08 am

Thank you for drawing my attention to the site of the National MS Society.

On the site you find a report of the recent Boston meeting of the Progressive MS Alliance. http://www.nationalmssociety.org/Nation ... -final.pdf
This means a small revolution in MS land!
I recommend you all to read it.

The report mentions the meningual inflammation, the B-cells, it asks what comes first?
Good questions!

The link with EBV has not yet been made but it will come soon, I am sure.
The thesis on my posting 26 March 6:55 am refers.
general-discussion-f1/topic15188-675.html
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Re: New MS Society "Wellness Program"

Postby ElliotB » Fri Apr 10, 2015 2:15 am

cheerleader, the MS Society is still not taking a clear stand when it comes to diet, exercise, etc., IMHO, although it appears they have changed their stance a bit - at least they are finally making recommendations of some kind. I enjoyed reading your letter and understand your point, but I just wanted to make sure those reading your post and letter are not confused as to the source and purpose. After my diagnosis a couple of years ago, I found it odd (and sad) that neither my doctor or the MS Society made any real recommendations to me (the only recommendation my doctor gave as to go on Copaxone), so this change is in the right direction.
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