H-pylori

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Jaded
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H-pylori

Post by Jaded »

Hey guys n gals

It's been a tough season here. Just had some biopsy results and it seems the h-pylori is back - or never went away.

Also I have a hiatus hernia.

I am not sure what to do. I have a prescription for MORE antibiotics and lanzoprazole - the 'triple' therapy.

I read this http://www.mygutsy.com/is-h-pylori-the- ... l-fatigue/

And of course, this http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3925854/


and I can say yes to most of those problems in the first link. If this is the reason for the ongoing tiredness then I need to do something about it. But not sure I want more antibiotics at the moment. It looks like it may be the only option. :confused:

If anyone has any thoughts - again I would very much appreciate you sharing them.

Many thanks

J. :cry:
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lyndacarol
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Re: H-pylori

Post by lyndacarol »

Jaded wrote:It's been a tough season here. Just had some biopsy results and it seems the h-pylori is back - or never went away.

Also I have a hiatus hernia.

I am not sure what to do. I have a prescription for MORE antibiotics and lanzoprazole - the 'triple' therapy.

I read this http://www.mygutsy.com/is-h-pylori-the- ... l-fatigue/

And of course, this http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3925854/


and I can say yes to most of those problems in the first link. If this is the reason for the ongoing tiredness then I need to do something about it. But not sure I want more antibiotics at the moment. It looks like it may be the only option. :confused:

If anyone has any thoughts - again I would very much appreciate you sharing them.
According to Wikipedia (https://en.wikipedia.org/wiki/Lansoprazole), lansoprazole is a proton-pump inhibitor (PPI) "which inhibits the stomach's production of gastric acids." It is the active ingredient in Prevacid.

As always, I recommend this 50-minute documentary featuring Sally Pacholok, RN, BSN and Jeffrey Stuart, D.O. (authors of the book, Could It Be B12? An Epidemic of Misdiagnoses and their new book, What's Wrong with My Child?); Lawrence Solomon, M.D., hematologist with Yale Medical School; Ralph Green, M.D., hematologist at UC Davis; and Donald Jacobsen, PhD, at the Cleveland Clinic (Homocysteine Research Lab).

@12:24 Medications which block 12 absorption are listed, including acid suppressors.
@23:00 Dr. Solomon identifies people taking medication for ulcers (PPI's) are at risk for B12 deficiency.
@23:25 On-screen message: "Acid Suppressing Medicines Block B12." Pacholok lists commercial product names.



Diagnosing and Treating Vitamin B12 Deficiency: "Everything You Want Your Doctor to Know about Vitamin B12"
Risk factors for B12 deficiency:
Vegetarian Diet
Pregnancy
Age over 50
Low Stomach Acid
Celiac Disease
Food Allergies
Eating Disorders Parasites
Use of Acid-Blockers
Use of Oral Birth Control Pills
Use of Metformin
Nitrous Oxide Anesthesia
Pernicious Anemia
Autoimmune Disorders
Pancreatic Insufficiency
Stomach Surgery
Intestinal Bacterial Overgrowth
Peptic Ulcer
Transcobalamin Deficiency
If you take the prescribed medications, I suggest that you and your doctor monitor your vitamin B12 levels.
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Scott1
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Re: H-pylori

Post by Scott1 »

Hi,

I can add those two problems to my long list of "been there, done that" issues.

The triple therapy should work. It is effective but it does take time. Don't let it get out of control. I reached the point where I had to suddenly stop driving, open the car door and throw up. It isn't funny, you always feel odd and you never know when it's going to hit. Take the therapy. It is indicative that a leaky gut may also exist.
On the hiatus hernia - that's an interesting one. As I child I grew up in a household of people who gurgled away blaming their hiatus hernias. My mother had hers surgically repaired and I reached the stage that surgery was contemplated. In the end I didn't need it and no longer have a problem. This is how I dealt with it-
Firstly, you have two problems; one is a probable gastric imbalance and the second is to do with how successfully food travels through your gullet and on to be digested. You can work on both at the same time.
The simple thing to fix is the Pylori. Just take the course of medication. This is also an opportunity to look at coinfections such as mycoplasmas etc as they can change the PH of your system. Work out if you have coinfections (blood tests) and treat them.
As you will be killing bugs you will also be upsetting your gut flora. Overdose on probiotics all the time.
As you have MS you probably have a leaky gut so do something to help that heal. Drink a glass of fresh carrot juice each day.
On the hernia itself, recognize it represents weakness in the muscles in that area. If you don't do something about that weakness then it will progressively worsen.
Some of the things you eat (and may enjoy) will need to approached a different way. The immediate hit list is things that you know may make the hernia act up. The basic principle is to not have too much bulk passing through the area at any time. Don't drink and eat at the same time. Drink first. The fluid flows easily the solids won't. A serve of mashed potato followed by a glass of water is a "no no". Drink the water first, then eat.
Some foods (eg dairy) used to also upset me so you are going to have to ask yourself over and over "Am I eating this food in the wrong order or too much of it". Gradually, if you limit the reflux occurring the burn on the gut lining will heal. Think carefully about bread and how it swells.
The other thing to address is muscle weakness. The standard approach is to either cauterize the pathway to shrink it or to wrap your intestines around the area to use their weight to narrow the pathway. You can just make the muscles stronger.
I found the stretching exercises from Pilates (I guess Yoga would be the same) that activate the upper thoracic area and are aimed at spinal flexibility fixed my hernia. This is not standard but it works. It's unlikely some fat old medico is going to get his colleagues to reverse their hernias by exercise and then write a paper that proves it so you can only try it and see.
Hope that helps. Ask again if I was too vague.
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Jaded
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Re: H-pylori

Post by Jaded »

Thanks LC - I stopped taking them last year when I had the same thing, for that very reason - the B12 issue. I mentioned this to the GP - he said some should still be absorbed. I may get some patches but I hope not to be on the PPIs for too long. I plan on going back for a recheck and will ask to see a specialist.

Scott - thank you. Yes I guess I should take the meds. Have had abx recently so really fed up of them. I take probiotics everyday now.

I know the yoga poses you mean. To be honest the symptoms are more nausea after I eat than reflux. So the hernia was a surprise. It has never bothered me. It's just the HP. The strange thing is my mum has a hiatus hernia and HP, and she's been on PPIs for years as her HP never cleared up. But I'm the only person I know with MS :(

I want to get this sorted as I think I might try the FMT treatment I read about here! Crazy I know….
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Scott1
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Re: H-pylori

Post by Scott1 »

Hi,

My experience was the nausea was the fault of the pylori. By all means take something that helps you feel better by settling the horrible feeling but if you don't kill the bug then you will be in the same boat as your mum. It probably took me a year to completely recover but a lot longer to forget about it. The man who discovered it was this bug that caused stomach ulcers ended up drinking a vial of the bacteria and curing himself with the antibiotic combination. He will win the Nobel prize for it one day as the prevailing dogma was that nothing could survive the stomach acids.
I would be interested to hear how you go if you follow what I suggested.
Regards
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lyndacarol
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Re: H-pylori

Post by lyndacarol »

Scott1 wrote:The man who discovered it was this bug that caused stomach ulcers ended up drinking a vial of the bacteria and curing himself with the antibiotic combination. He will win the Nobel prize for it one day as the prevailing dogma was that nothing could survive the stomach acids.
The man was Barry Marshall, M.D. and he did earn the Nobel prize 20 years after his discovery!
Jaded
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Re: H-pylori

Post by Jaded »

Thanks guys - I am on the antiobiotics starting today. Also taking probiotics daily too.

I tried to reply from my phone this morning but it seems I can''t post messages from there!

I'll let you know how I get on.

Thanks again.

J.
Jaded
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Re: H-pylori

Post by Jaded »

I finished the 'triple therapy' yesterday.

I also noticed that in the last couple of days I have had a soreness, almost like a bruise, in my cheek bone, and eye socket.

I don't think I had an accident. When I checked google, it pointed to the trigeminal nerve.

I am overdosing on B12 and mag (as far as possible) at the moment but really quite scared.

Last year the TN started after I had been on the protein pump inhibitors for a few months. Now after a week (not been prescribed any more thank goodness) this has happened.

Hoping it's just a temporary reaction and goes away soon. :(

J.
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Scott1
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Re: H-pylori

Post by Scott1 »

Hi,

I wouldn't tie that to the treatment. I used to get that but it just something that happens. It was intermittent for me and went away as my general health recovered. Concentrate on getting well and staying well by looking at resolving infections, getting adequate nutrition, regular sleep and exercise and forget about that pain. Even a good massage can help. If you didn't have MS you wouldn't worry too much about it.

Regards
Jaded
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Re: H-pylori

Post by Jaded »

Thanks Scott

I can handle feeling like I've been punched in the face, just hope the excrutiating TN doesn't return.

You are right - I need to work harder on my nutrition. I am going to try some juicing.

Thanks

J
Jaded
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Re: H-pylori & consequences?

Post by Jaded »

So a month on and yes. I have had some small shocks that were the early signs of TN.

Really quite scared and I have been to the upper cervical chiro - but I had been seeing her regularly. I think I have lost faith in that.

I'm trying acupuncture and 'tissue salts' and read somewhere about colloidal silver but that would work if it is caused by a bug. I think if anything it is more physical - something to do with my neck.

I saw a chap who is a friend's father - mustn't do this again - and he claimed to know everything. He does have a lot of certificates on his wall but he told me I should only eat foods that are grown in the country I live in. And not grains. Hmmm. Quack overload? He did suggest I take L-glutamine.

You can imagine that the other MS issues are getting worse….taking MSM now and hoping it helps the spasticity which is increasingly affecting my mobility. And sanity!

Kind of really lost and overwhelmed by the info overload. I appreciate that TN is rare but if anyone has any suggestions about any of the above I would be more than grateful!

J
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Scott1
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Re: H-pylori

Post by Scott1 »

Hi,

I can only tell you what helped me. The TN might be helped by someone who is good at pressure point massage. Particularly just working around the scalp and neck. It wont be comfortable when they apply pressure. Some times qualifications runs inversely to usefulness when it comes to massage so you may find the shiatsu man down the street is a lot better than a physio or chiro. Working on the cervical spine is fine but you have a thoracic and lumber region plus hamstrings that pull into the glutes. Your whole posture can be influencing how you feel and you need to work the whole body yourself not just rely on someone giving it a shove in one place.

Have you had yourself checked for coinfections such as mycoplasma and chlamydia? Have you been checked for EBV?
I have found controlling EBV is very important. I have also found ensuring you can assist your cells to make ATP is a must.
To do that I take a very high dose of coenzyeme Q10 (750mg) and 2000mg of acetyl-L-carnitine. That's not the end of the story but its a start.
I have a long, rambling, difficult to read post here that might help - http://www.thisisms.com/forum/regimens- ... 24019.html

You don't mention any conventional medical advisor. Do you have one and what is advice you have been given?
How are the other problems with pylori and the hiatus hernia going ?
Regards
Jaded
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Re: H-pylori

Post by Jaded »

Scott - thank you.

I am half way through reading your post - but I have been taking NAG. For a long while. It could explain the stiffness...

I am not sure how you get tested for EBV etc, doctors here (UK) take the conventional approach and funds are limited.

Hernia is not a real problem, i think he h-pylori restricts what I feel like eating - fewer greens than I would like.

GP has given my amitryptaline for the TN which is where we started last time. I haven't taken it yet but today and yesterday I have had more than just the one reaction. I started taking St John's wort at first but then read that it is not to be taken with HRT so I have stopped.

I'm going to finish reading your post - thank you for sharing that information. Gosh if there's a chance I can feel better...

Where do you get such high dose COQ10 and acetyl-l-carnitine?

Thanks

J.
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Scott1
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Re: H-pylori

Post by Scott1 »

Hi,

Please get rid of the NAG. I think it is a disaster for us. Switch to NAC and curcumin.

I think the only thing that saved me from exacerbating the attack was I took a prolonged course of Zinnat which is an antibiotic that works on gram positive bacteria plus maintained the rest of my regime.
If you have EBV it primes certain cells to be very reactive to things like peptidoglycans that come from any bacterial infection. Hopefully you are lucky but I will never touch NAG again.
The doses aren't that unusual. Any good chemist shop will stock them in the "roid boy/muscleman" section. Just make sure you buy a good Q10. Order the book by Stephen Sinatra called "The Sinatra solution-metabolic cardiology" It applies to us because it talks about reperfusion which I think is a big issue for us.
Sorry my post rambles.
Regards
Last edited by Scott1 on Tue Sep 01, 2015 2:48 am, edited 2 times in total.
Jaded
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Re: H-pylori

Post by Jaded »

No more NAG. Over the past year I have felt like I've been knocked sideways. Awful.

I have questions regarding your regime - I will post on the appropriate thread.


Thanks Scott.
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