I found this board a few months ago - I spend the majority of my spare time researching MS, as I have a 16 year old son who is being treated for MS, and has been for the past 3 years. I was very impressed with the board when I had the time to take a good look at it, and I referred several acquaintances to it. I love the fact that all of the medications are divided into different forums, and the articles are very informative. I posted as a guest a couple of times with warm, welcoming responses, and then I decided to join.
I feel as if I cannot get enough information, and my research has become somewhat of an obsession with me. I can empathize with those of you who have MS, as well as see it from a "caregivers" point of view as a mother of a young man with MS. We all make tough decisions every day, and these decisions aren't any easier when you are forced to make them for someone else. I felt I had alot to offer this board for several reasons. I have a different perspective on this disease as a mother to a teen with MS. I can't really say it's from the "outside looking in", because this has all been really personal for me, and I've suffered through every relapse and every spinal tap and every injection / reaction right along with my son, but my perspective must be different from those of you who live with this disease inside your own bodies every single day of your life. In my heart, it feels the same, though. I've cried more tears than my son ever thought about crying. I have an extensive medical background, unfortunately not in neurology, but my research obsession has brought me up to speed, and there isn't much you can throw my way that I don't have knowledge of.
I saw this message board as a support group, as well as a fountain of information, so I joined. And on one of my very first postings, I was blasted by a member here and deemed irresponsible for decisions regarding my son. This member was willysnout1. He also went on to question how I could sleep at night. That is not "support".
I don't expect everyone to agree with everything I say, and I respect anyone's right to disagree, but, Willy, you didn't know anything about me, and I mean ANYTHING! And it's a bit too late to ask the questions AFTER you call a mother of a 16 year old with this horrible disease irresponsible, believe me. I responded to you immediately, but in my haste, I must have deleted the message, because it never posted, and Aaron assured me that it was not removed. I guess that is a good thing, because I forced myself to cool down a bit and I believe this is a much better way to do it than the first attempt was.
I received your apologies, Willy, each and every one of them. Under normal circumstances, I would have accepted the apology and moved on, but after reading through your history of postings on this board, I do not accept your apology. You have a long history of this type behaviour on this board, and you have gotten away with it way too many times. At first, I honestly thought you had some sort of personal vendetta against me, but I see that you just disagree with pretty much everything in this world. Sometimes, we do things that we can't take back. I'm willing to bet you've spent as much time apologizing in your life time as you have instigating controversy, because that's just who you are. You try to come across as someone who is knowledgeable, but when you don't think before you speak, it just doesn't fly.
I almost left the board because of this, but instead of leaving, I would like to request that you NEVER EVER respond to me in any manner, Willy. I don't care if I post that it is raining and you want to argue that it isn't raining in your part of the world, please refrain from doing so. I have enough chaos in my life without adding you to the mix. And I would think you have run enough people away from this board for now. Nothing I say from here on in will be directed to you, Willy.
And to the rest of you, I have truly appreciated your warm words and support. You guys put me in touch with an excellent source, a group of parents of teens with MS, and I will be forever grateful. I think this board has such great potential, and I'm glad to have the opportunity to know each and every one of you! Take care!