MS or Hughes Syndrome? Misdiagnosing.

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Postby Lyon » Thu Aug 10, 2006 1:32 pm

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Postby robbie » Thu Aug 10, 2006 5:06 pm

ms has already won lyon, there is nothing i can do about it. ms has it's own mind and agenda for me, i guess u could call it fait. i sit alone duruing the day thinking which is one of the things i can still do well, there is so many people with ms that are so much worse off than i am and for that i am gratefull and i feel for those people thinking that i will be there someday, it's just hard somedays when i feel so s_____y to be possitive, u just do the best you can unfortunatly thats not always the best.
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Postby Lyon » Thu Aug 10, 2006 7:31 pm

oo
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Postby omg » Tue Aug 22, 2006 11:11 am

I think the need for people to raise the profile of the ties between the 2 is the most important thing see the link below

http://www.timesonline.co.uk/article/0, ... 86,00.html

Mr Simper had lived with "MS" for 26 years!!

If articles like this can mean that that 2% (or 5% depending on which statistic you believe) can be correctly diagnosed with Hughes then its truly not about false hope but giving people their live back. The fact that so few doctors have heard of Hughes and that it not routinely screened for is awful.

But just imagine being part of that 2% and not knowing.

My mother was diagnosed 20 years ago based on an MRI alone you can bet your life that I’m going to make sure she’s tested for antiphospholipid antibodies!!
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Postby Arron » Tue Aug 22, 2006 11:27 am

hi omg, welcome to the site :)
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Postby bromley » Tue Aug 22, 2006 12:37 pm

The UK MS Society has posted the following on the Hughes Syndrome issue. The general view is that misdiagnosis of MS is very rare.

http://www.mssociety.org.uk/go.rm?id=18183
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Postby Lyon » Wed Aug 23, 2006 2:51 pm

oo
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Postby CureOrBust » Thu Aug 24, 2006 1:44 am

I think that hughes also can show up on an MRI. The following pubmed article talks of the differences.

<shortened url>
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