I think the need for people to raise the profile of the ties between the 2 is the most important thing see the link below
http://www.timesonline.co.uk/article/0, ... 86,00.html
Mr Simper had lived with "MS" for 26 years!!
If articles like this can mean that that 2% (or 5% depending on which statistic you believe) can be correctly diagnosed with Hughes then its truly not about false hope but giving people their live back. The fact that so few doctors have heard of Hughes and that it not routinely screened for is awful.
But just imagine being part of that 2% and not knowing.
My mother was diagnosed 20 years ago based on an MRI alone you can bet your life that I’m going to make sure she’s tested for antiphospholipid antibodies!!