I had a Busy day yesterday, bad day today:
Visited my neuro yesterday and did a number of simple errands. I thought I was holding up great but today I feel really bad (ill). Guess I over spent my energy budget.
Anyway they said “no tysabri for you!”. I guess the’re only giving it to people who have a lot of active inflammation. They said PML risk is 1 in 1000. I can’t help but wonder about how much stuff is going on in our ms bodies that they simply do not have the technology to measure.
She wants me to try 4AP? It might help fatigue (33% seem to benefit from it) Its not FDA approved but I guess I’ll try it.
http://www.southshoreneurologic.com/cli ... s-4ap.html
Let me know if anyones had success with it.
Oh well. Maybe a couple of days down will help.