This Is MS Multiple Sclerosis Community: Knowledge & Support

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Bob,

see link

http://www.thisisms.com/ftopict-1363.html

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thx for the help and info rob

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Good luck with that Ian.

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John
I am what I am

Robbie you need to go into your neuro like "YOU ARE IN CONTROL". If your neuro doesn't support your decisions try another one. Dr. Lee at Sunnybrooke is great. You need to go armed with the paperwork for what you are interested in and what little science there is to back it up. You need to tell them WITH CONFIDENCE the interest you are taking in your health and then you need to know if they are with you or against you. Even our family Dr. took some work but once I started ordering test through the labs and by passing him he realized NO was not an OPTION when I asked him to check something for us. John was more timid at first as he was taught the Doctor knows best. I come from a family disinterested in a Dr. telling me what's up in 1/2 hour visit when I live in my body 24-7. I know whats up he only knows what I'm able to communicate to him. End of story take Control be FIRM and No is not an option.

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John was diagnosed Jan 2005. On lipitor 20mg .On Copaxone since July 4,2005. Vitamin D3 2000iu-4000iu (depending on sunshine months)June 10 2005(RX::Dr. O'Connor) Omega 3 as well Turmeric since April 2005. Q10 60mg. 1500mg liquid Glucosamine Nov 2005.

you ROCK mel i totally agree with what you're saying. how wrong is it for a doc to say no to tests just assuming you don't know what you're talking about! and yea the half hour vs 24/7 thing so right. gtg

oo

Not sure i'm ready to fire my neurologist yet, all these drugs along with their stories "good and bad" it's so confusing to say the least. I admire the courage it must take to commit to one of them...

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Robbie, as Lyon said:


Perhaps for some of us, the method of coping (I hate that word!) is simply to feel we are doing SOMETHING--whether it's reading up on research or books, watching those medical programs on TV, noting events in our own experience, trying diets, supplements, or something else that we are pretty sure will "First, do no harm." The key may be simply DOING what we are able to do.

Those of us without a scientific background are at a disadvantage, but we offer what we can. You can, too. You can think over your experiences and observations. You may find a likely camp here to join--EBV, hormones, helminths, insulin, antibiotics, or a new approach. Then read and research like crazy! YOU may be the one to find the article that makes everything fall into place. Just keep an open mind to any possibility. Prayers can help us all. Best wishes in your endeavor!

Robin,

Thank you very much for posting this information. I will discuss Campath with my neurologist even though he was skeptical of its efficacy given the results of some trials.

beyondms

Hi, my partner is female, 26, and has just been offered the campath drug trial. she has had 2 attacks in the space of a year. She is worried about the side effects. but surely the long term out weighs the short term?