robbie wrote:I was just wondering if your severity of ms has an affect on your neurologist’s decision to get you involved in some of these therapies. I know when I was in better shape my neurologist wouldn’t even think of these therapies. Do I have the last word in how I want to treat my ms or does my neuro have the last say in what I can try. i read all of these different treatments and all the people that are being helped and wonder why can't this be me, it would be so eaisy to miss the boat!
Whatever you decide is up to you but don't feel that your only choices are the ones your neuro would agree with. It's too early to say but your best choices might be ones that your neuro wouldn't agree with.
raven wrote:In my case there was no chance of getting a placebo, the trial was not blinded. Also, given the aggressive nature of my MS I was in the unenviable position of acting then or not acting at all.
The interim results give the effectiveness of Campath at 75% which surprised me when they were released. I know of no-one who has been treated who has subsequently relapsed (Those running the trial in the UK were also a little surprised when I discussed it with them).
Not only has my MS completely stabilised but is actually slowly reversing. Stabilisation was my goal, the reversal of my disabilty an unexpected but very welcome bonus.
Given the promising results of treatments in the pipeline, Campath, Rituximab, Tovaxin etc. the future for MS patients is looking much brighter than it was a few short years ago.
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