Robbie, as Lyon said:
Whatever you decide is up to you but don't feel that your only choices are the ones your neuro would agree with. It's too early to say but your best choices might be ones that your neuro wouldn't agree with.
Perhaps for some of us, the method of coping (I hate that word!) is simply to feel we are doing SOMETHING--whether it's reading up on research or books, watching those medical programs on TV, noting events in our own experience, trying diets, supplements, or something else that we are pretty sure will "First, do no harm." The key may be simply DOING what we are able to do.
Those of us without a scientific background are at a disadvantage, but we offer what we can. You can, too. You can think over your experiences and observations. You may find a likely camp here to join--EBV, hormones, helminths, insulin, antibiotics, or a new approach. Then read and research like crazy! YOU may be the one to find the article that makes everything fall into place. Just keep an open mind to any possibility. Prayers can help us all. Best wishes in your endeavor!