the 11 months that she was on the trial, they didn't change. So much for the heavy importance trials place on the number of lesions -snip-Marg was on the placebo
Gee that placebo worked pretty well! I wonder what it was! No progression of lesions in 11 months! I wonder how soon it will be out!.....
Bob I thoroughy enjoy your posts! I see you as questioning and open in a good way.
but it IS hard to debate with a person who has no common ground with the autoimmune theory especially if you think their point of view is plain dumb as some seem to. to me this is naivite...or contempt prior to investigation
In my defense I would say that if you speak with an honest neurologist they will admit that autoimmunity is a theory that is unproven. My first neurologist was a researcher as well and he said that MS is not autoimmune in his opinion, and there are considerable numbers of authoritative peer reviewed medical papers on just that subject as well, so these experts are out there. I will not bother citing them here, though I have read and understand them and I find them convincing.
So, not everyone thinks MS is autoimmune, though all the pharmaceutical companies are using it as a working model and they actively fund research in that arena. Marketing budgets make sure we all hear a lot about that.
The problem is that once a person like myself who needs treatment decides after investigating it that nonautoimmune models are correct-and for me it is simple math; too many patient years between Mom and I with unacceptable results-then you have few resources for treatment. I take copaxone, a careful diet, and antibiotics, so I am fighting the good fight according to my lights, and covering my bases.
Thank you for oppportuinity to share my rationale. Interesting Phil and Marg are both like me, few lesions. I find it utterly bizaar to be in the situation where my doctor is looking at my MRI and discussing how good it looks when I am progressing. It seems insane. Early on I was told I'd probably never need a cane or anything since the lesions did not increase at all and I could still jog at 6 years. Not true at all!
I am completely willing to believe that some folks like Raven have something autoimmune considering his great experience with Campath and I potentially have something else considering my failure with immunosuppression and my lack of inflammation with huge losses in ability anyway. Also I am willing to say I have NO IDEA what anyone else has. But this much I know is true: I am not the first nor will I be the last person to discover that reducing inflammation has done nothing for me, the question is why....