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PostPosted: Thu Sep 21, 2006 1:17 pm 
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Location: Bristol, England
A story from my local newspaper. Professor Scolding is my neurologist and all round good egg. At my last appointment with him he intimated that he hopes to be starting human trials within a year.

<shortened url>

Hey Ian, if you start machine gunning MS researchers could you leave the Prof til last? I actually believe that he may be one of our best hopes for full restitution from MS :)

Robin

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Do not go gentle into that good night. Rage, rage against the dying of the light.


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 Post subject: trials
PostPosted: Thu Sep 21, 2006 1:40 pm 
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Robin,

Have you signed up to be a test guinea pig? Good luck to you if you have.

gwa


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PostPosted: Thu Sep 21, 2006 1:47 pm 
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Robin,

Don't forget to mention your old friend Ian when you next meet Professor Scolding! If you can get me on the trial you won't be driving around in that clapped out BMW for much longer.

Ian

PS Prof Scolding does seem very nice. Here is his answers to some questions I asked him.

http://www.mssociety.org.uk/application ... 0&id=14320


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PostPosted: Thu Sep 21, 2006 1:58 pm 
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Hey! my BMW is not clapped out!!! As you're turning up to the wedding, for that comment I've decided to sit you next to Julie's sister in law!!!!. I can be sooooo cruel when I want to be! :)

Push me further and you'll be sat next to her mother!!!!!!!!

Unfortunately as I'm already on a clinical trial I'll probably be unable to get myself on another one but It's comforting for me to know that a researcher like Neil Scolding feels he's that close. Camapth to keep me from deteriorating any further and then stem cells to give it all back.

Works for me

Robin

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 Post subject: atrophy
PostPosted: Thu Sep 21, 2006 6:16 pm 
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Ian,

I was feeling pretty good today until reading your clip about DR Cole's statement concerning "unrelenting cerebral atrophy" in SPMS patients.

Now I think my brain is pretty much goo and mush and I will feel sorry for myself the next few days.

Maybe this is why my head started feeling weird and pressurized about 5 years ago and no doctor can explain why. It must be unrelenting atrophy. :cry:

gwa


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PostPosted: Fri Sep 22, 2006 3:04 am 
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GWA,

I think you said you have had MS for 35 years - I can see by your posts that you are still as bright as a button - so the atrophy is not having much affects on your cognitive functions.

The phrase 'unrelenting cerebral atrophy' gives me sleepness nights and I told Dr Coles this. What we need is that expanding foam which builders use to fill holes. We could squirt some through our ears and problem solved. Biogen could market it as Foamamab and we could retire wealthy.

Ian


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 Post subject: builder foam
PostPosted: Fri Sep 22, 2006 6:43 am 
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Ian,

As long as our MRI's would show no new lesions, we should have a money making winner. Let's talk. :D

gwa


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PostPosted: Mon Sep 25, 2006 1:52 am 
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Sorry for taking this off topic..!

Ian you can breathe easy I'm the one in charge of seating arrangements .... :wink:

Jules


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